Tuesday Thoughts: Martin Naughton, Ten Years On

It’s been ten years to the day since the disability movement was shaken by the passing of our beloved Martin Naughton. You only had to meet Martin once to know that you were talking to someone special. He lived in-between spaces; as a child, he moved from his home in the Gaeltacht in Spiddal to St Mary’s in Baldoyle without a word of English (legend has it that his friend John Doyle taught him English); he worked in St. Mary’s teaching swimming classes when many of his fellow residents were passive recipients of care; and he fought for the right to true independent living at a time when, in Martin’s own words, disabled people “were to be cared for rather than cared about.”

In the later years of his life, Martin approached Joanna Marsden, former editor of the Irish Wheelchair Association’s feature magazine, SpokeOut, as well as being a journalist and author extraordinaire, with the proposition of helping him to pen his memoir. Sadly, when Martin passed away on 13 October, 2016, Joanna had not yet finished penning the memoir, and was hesitant to complete the project without him. Thankfully, Joanna came to the same realisation as many of us who have worked with Martin in the past, myself included: Martin wasn’t one to hold someone’s hand. He had great vision, but often needed help in executing his grand ideas, and so he had a rare ability to encourage people to trust in their own capabilities and to have the courage to make mistakes. Thus, Joanna completed and published Martin’s fascinating memoir, Never Know Your Place, and in doing so, played a pivotal role in keeping Martin’s spirit alive.

Everyone who has ever met Martin seems to remember their first meeting. Many people were introduced to him in Chief O’Neill’s, a hotel that was once located in the heart of Smithfield. When I met him, I was only twenty-one years old, and I was eager to be spoonfed, but it soon became clear that Martin wasn’t going to do that. He wanted me to establish a Leader Forum in Dublin. The disabled people I met during this time, including Hubert McCormack and Peter Moore, helped me more than I ever could have helped them. Thus, I was able to apply what I learned during the summer of 2005 to my everyday life long after the summer job had ended.

Martin became the recognisable mouthpiece of the Independent Living Movement, often filmed or photographed in a red jumper and matching taqiyah-style hat.

 With his soft-featured face and largely paralysed body, he could elicit pity from the coldest of politicians, but once he started speaking, he made it clear that he was not an object of pity, and that he meant business. After all, government cutbacks were a constant threat to his independence and in turn, his freedom and his livelihood. Accidently or otherwise, guarding these for himself – and his peers across the country – became Martin’s top priority. Some would say that Martin was only too happy to be the face of the Independent Living Movement, and if that’s the case, then we as a movement were happy to have him stand at the coalface. We praised him, doubted him, admired him but I, at least, never envied him. Campaigning for the right to true independent living wasn’t just something Martin did, it became something Martin was: a symbol of disabled people’s ambition, of our quest to live the lives that we deserved.

Seeing the recent campaigns led by disabled activists around introducing a once-off cost of living payment for disabled people made me swell with pride, as Martin and others taught us younger activists to never take no for an answer. Martin and his peers were notorious to resorting to outlandish measures to get his point across. One of my favourite photos of Martin (which I can’t find on the web right now) shows him and Michael McCabe, dressed in stripy black and white prison uniforms, surrounded by a cage. The purpose of this demonstration by the pair was to illustrate how disabled people were becoming imprisoned by cutbacks. 


Martin Naughton touched the lives of both disabled people and our non-disabled allies. Then president of Ireland, Michael D. Higgins, paid tribute to Martin on his passing. Christian O’Reilly, a now prominent playwright and screenwriter, landed one of his first jobs working with Martin in the mid-nineties, and immortalised him in the film Inside I’m Dancing/Rory O’Shea was Here, and later in the stage play No Magic Pill. Christian later explained that he wrote the latter because he wasn’t satisfied with his attempt to capture the tenacity, the cheekiness and the complexity that embodied the man with the hat.

This challenge is not Christian’s alone. Younger activists coming behind us will never have the privilege of meeting him in person, and that’s why, ten years after his passing, I think that it’s crucial that we remember him, talk about him, and strive to honour his amazing legacy. To do this, we must believe within ourselves that we are worthy of equality. We must insist on sitting at every table where discussions about our lives are taking place. We must resist the urge to shake those collection buckets and instead demand our rights, which have been denied for all too long.

We owe it to Martin, and indeed to all the activists who have since passed away, hoping that their contribution to society will make it a little better. This year, the Irish disability community lost another remarkable activist – who “was born in 1954, the same year as Martin” – our comrade Dermot Hayes. Dermot and Martin were great friends, and although Dermot was very much an activist in his own right, establishing many community initiatives for both disabled and non-disabled people alike, he still looked up to Martin and credited him for the support Martin gave him. 

And to those of us who knew them, they will never be forgotten.

A Tribute to Martin Naughton: Activist, Campaigner, Friend

I woke up with a start this morning, the darkness threatening to suffocate me. My sleepy brain told me that I had woken up in a world that was different than the one I opened my eyes to yesterday, which was the thirteenth of October, 2016.

Then I remembered. I felt my stomach close in on itself as the events of the last twenty-four hours rushed back to my memory: Martin Naughton, prominent disability advocate and all-round good guy, passed away yesterday aged sixty-two, following a short illness. There is nothing worse than hearing the news, via social media (so tacky), that someone who made such a huge impact on your life has died. At first I thought (hoped) it might have been a hoax, a rumour, but as the Independent and RTE published their stories, the reality of our loss hit home.

Everyone in the disability world knows Martin. He’s our representative, our ‘go-to’ guy. If the Independent Living Movement was a mafia, he’d be our Don; he was always trying to think of new and seemingly radical ways of equalising the playing field for people with disabilities. (such as giving us full control over our lives in the form of Direct Payments – I know, outlandish, right?!)

Martin had an impairment called Spinal Muscular Atrophy, and spent his childhood in St. Mary’s Hospital in Baldoyle, where he developed a strong stance against the institutionalisation of people with disabilities.  He became a youth leader and coach there, and became a strong advocate for people with disabilities. When he went travelling in the US, he saw the disability movement in action first-hand and on his return to Ireland, immediately set about bringing Personal Assistance here. This began with ‘Operation Get Out,’ a programme designed to move people who had been institutionalised back out into the community and culminated in the development of Ireland’s first Center for Independent Living in Dublin.  There are now around 25 CILs across Ireland today, thanks to Martin.

Martin dedicated his entire life to trying to achieve equality for people with disabilities, but the first I ever heard of him was in 2005, when I was looking for a summer job in Dublin. My Personal Assistant arranged for me to have a job interview with him in Chief O’Neill’s in Smithfield. She didn’t know much about him, so I’d pictured a stern-looking man in a suit, wielding a pen and ticking boxes as I spoke. As it turned out, I didn’t do a lot of talking during that interview, but I’ll never forget it. Martin’s kind, soft features put me at ease as he spoke passionately about the need for Leaders (people with disabilities) to take full control of their own lives and to have a platform from where they could voice their concern about their Personal Assistant Services. This platform was called a Leader Forum and it was my job to help him put it together. This experience later enabled me to help establish forums in Laois and Offaly. I could see that this was a man with a rare combination of passion, vision, and stubbornness. He would not rest until he realised his goals.

That September, Martin would lead the biannual Strasbourg Freedom Drive for the second time, and although I couldn’t go, it awakened in me an awareness that issues facing people with disabilities in Ireland are commonplace across Europe. During this Freedom Drive, people with disabilities across Europe convened at the European Parliament with key demands, which invariably included the deinstitutionalisation of people with disabilities and the recognition of the Personal Assistant Service as a basic human right. The slogan for the event was ‘Nothing About Us Without Us.’

I started working with Offaly Centre for Independent Living Ltd in 2008, and thanks to Martin, I had a clear idea of what I wanted to achieve. However, I soon discovered that it wasn’t as easy to motivate others to fight for equal rights. During the recession (that we’ve apparently come out of), a time when ‘cutbacks’ instilled more fear in people with disabilities than any other word, Martin was actively protesting against these cutbacks. He and other activists took the drastic measure of camping outside Leinster House, and their perseverance was worth it when the cuts were reversed.  Just last year, in September 2015, he organised another three day protest outside the Dail where he expressed his disappointment to our Taoiseach, Enda Kenny, on hearing that investments were going to be made into residential institutions.

Martin is a celebrity, and we all loved to see him coming to Offaly. In 2010 he agreed to be filmed as part of a promotional DVD Paddy Slattery and myself made for Offaly CIL Ltd, called ‘My Life with Me in It,’ in which he explained how he established the Independent Living Movement and how he helped Michael Nestor establish Offaly CIL. In October 2011, when prominent US advocate Judy Heumann came to visit us in Offaly, Martin came to meet her, noting the many similarities in the struggles for independent living for people in the US and in Ireland. That day, he introduced me to Judy as a hard-working Trinity Graduate who was passionate about forwarding the Independent Living Movement. It was the highlight of my seven years’ service with Offaly CIL. Despite the fact Martin met so many people every day, he had still taken the time to get to know me as a person and believe in me as a person. I’m crying just remembering that moment!

And in spite of his many achievements, Martin always strove to achieve more. The Offaly Leader Forum (now the Laois/Offaly Leader Forum) organised a celebratory event in September 2015 to mark twenty years of Independent Living in Offaly. While other speakers were maudlin about the past, Martin focused instead on the future, warning us that must never become complacent in our pursuit of equality. Before his passing, he was actively campaigning for the introduction of Direct Payments, insisting that we must believe in our ability to take control of our lives and to achieve our potential in everything we do.

Nobody could accuse Martin of not achieving his potential. And now that he has passed from this world, we have to ensure that his legacy lives on, never for a moment doubting that we deserve anything less than to live with dignity, respect and choice in our own communities.

Codladh go sámh, a chara. You will be missed, but never forgotten. Thanks for everything xx