Safety in an unsafe world

Today, the sad news broke that 24 year old Karen Buckley was found dead after a three day search. At the time of writing this blog, a man has been arrested for her murder. Karen’s disappearance and subsequent death has saddened everybody: people who are in their twenties who know only too well that they are not immune from her fate; parents who worry about their children who have left the nest and are living in all corners of the world; parents of younger children such as myself despair at how we have brought our children into a world that is so dangerous that we become suspicious of our neighbours and sometimes even those we love.

I was talking to my aunt about this degeneration of modern society, how the world has somehow descended into utter chaos, a world where nobody bats an eyelid at reading about murders, rape, kidnapping, muggings. ‘I find it very sad and disheartening that Ali is growing up in such a horrible world where people don’t give a crap about who they hurt. Drugs and violence everywhere. Things are so much different nowadays.’ My aunt, having one or two more years’ life experience behind her than I do, smiled and said, ‘We have seen the atrocities of Northern Ireland, the muggings and the drug wars have raged on for decades. The only difference is that you now have a child. And when you have a child, the world seems to be a much scarier place, because you suddenly have to protect your child from it.’ These words came to mind as I read the news this morning.

Twenty-four is so young. I try and cast my mind back to what I was like in my twenties. I remember with more than a pang of guilt how I arrogantly screened my mum’s calls because we had fallen out over something trivial, and I didn’t care if she was worried. As a mum now, I’ve no doubt that she was sick with worry. What if something had happened to you? she’d said angrily, her face white from sleepless nights. ‘But nothing did, I’m fine, would you calm the fuck down’ was how I responded to her ‘ridiculous outbursts’. Yeah, I’m really not nice when someone tells me what to do.

As a college student, I went out on the town at every opportunity. I remember being in Blackpool and singing the Irish national anthem at the top of my lungs outside the most British pub I could find (I strongly believe my speech impairment saved my life that night. Incidentally – true story- a man was seriously injured in a fight a couple of yards from the pub, a few hours later. We were so lucky. And so stupid). I remember going to Mojos in Mullingar with a friend and walking/getting a lift on her knee through Mullingar while blind drunk, wading through the throngs leaving the nightclubs. Both of us were probably wearing short skirts at the time. And yet, if we had been attacked, would we have been blamed because we were in short skirts? Or because we had disabilities? Would it have been our fault?

My dad follows this blog (often he’s the only one to leave comments here – hi dad *waves*) and he is probably furious at me for being so reckless and irresponsible. It’s a wonder how he gets any sleep. I’ve tucked my baby up in bed and although I will get up a few times during the night to check her (as you do), I’m reasonably confident she will be okay and not wander off anywhere. When she was younger, we baby-proofed the house, and we put everything sharp/dangerous out of reach and hid washing and dishwasher tablets. Now she is more independent, making friends and slowly moving away from the protective bubble wrap I envelop her in. I have to trust when I leave her with others, such as friends and family, that she will be safe. And I’ve always found that so difficult, but that’s more my problem than anyone else’s. It’s hard sometimes to believe that I’m the same person as that twenty-four year old I described above. How I’ve become so cynical, so untrusting, so guarded in everything I say and do (except for this blog of course).

I would like to end this blog entry with this thought. Karen Buckley (who I don’t know and have never met) did not ask for her fate, and neither did anybody else who may have experienced a similar fate. People, young and old, make mistakes, act foolishly, do things that they regret, but nobody deserves to be murdered or hurt for making these mistakes. There will probably never be a world where there will be no need to tell our children ‘Don’t trust strangers. Don’t walk alone or you will get hurt. Always tell somebody about your whereabouts.’ Whatever happened to Karen was not her fault, and we must remember that. Only by exonerating the victim of any responsibility can we ensure that we create a safer world for others, and especially our children.

Owning my limitations

I have a confession, and anyone who knows me will appreciate how difficult it is for me to say these words. I think I may have some limitations. When they read this blog, my husband and my dad will probably read the italicised sentence a few times, just to make sure they read it correctly. I hate admitting I can’t do things. Quite frankly, failure makes me feel weak and pathetic, and instead of learning from these experiences and moving on, I persevere until I’m certain it can’t be done.

Alison has recently started nagging me to teach her how to use a skipping rope and hula hoop. As I have serious coordination issues, I can’t do either, and it makes me feel stupid. I fob her off with ‘someone else will teach you’, but sooner or later she will want a straight answer to these questions and just like that, I will be forced to once again accept my shortcomings while hating myself just a little inside.

There was, of course, a time when I was completely oblivious to what my limitations were. Here are some of these times. Rest assured that I am sitting here blushing behind the glow of my laptop screen.

  • I love writing, as in writing things down by hand. To feel the pen glide (or dart when you have involuntary movements) across the page is one of my guilty pleasures. Alas, my handwriting makes the doctor’s worst scribbles easily legible. As a child, I loved writing in notebooks and diaries (as all little girls do) and fought tirelessly with my parents because I couldn’t see why I couldn’t write like the other kids. I wrote all of my Leaving Cert notes by hand because that’s how I remember things best. My parents cruelly forced me to use a computer and laptop instead. Sure, doing so enabled me to go to university after doing my Leaving Cert, but that’s not the point. I will never admit they were right (pig-headed, moi)?
  • I spent about a month when I was eight trying to cycle a normal two-wheeled bike with stabilisers that Santa had brought me. It was only after about seven falls, countless bruises and a deep scrape that went from my thigh to my ankle that it dawned on me that this wasn’t going to work.
  • I tried both skipping and French skipping in the playground. These trials didn’t last long as I didn’t know how to jump. After a while, I gave up, but I wasn’t very happy about it.
  • I was never good at knitting or sewing, but I kick ass at weaving, as I discovered in second class. The teacher gave me a weaving loom, and with that I wove a scarf, a headband and a purse. However, when I took Home Economics in first year in school, I was given the task of making a collage while the other girls did their cross stitching and used the sewing machines. The experience scarred me to the extent that I can’t bring myself to make a collage with Ali.
  • I remember getting brochures in school about really cool summer camps that included activities such as skating, bungee jumping, Qazar, water fights, football, basketball and hurling. My parents would look at each other and my mother would say, in a suspiciously bright voice, ‘How would you like to go to a better summer camp, where you can even sleep over?’ This place was Clochan House, a respite centre for people with disabilities just like me. They couldn’t go skateboarding either, but once I overlooked the fact that I hadn’t gotten my own way, I enjoyed myself and even nabbed meself a husband! Best camp ever! (bet you’re sorry now, eh dad?)
  • I took guitar lessons in TY much to the amusement of my classmates. At the end of a three month course, I could play E minor. I’m ashamed to say that in my family, at least four of us can play the guitar. I am not one of them.
  • Much to my disappointment and relief, I will never be a slave to fashion. High heels and me = disaster. In an effort to look elegant I wore high –heeled shoes to my school grad. They came off within ten minutes as I fell over for the fiftieth time. I looked pissed, and I desperately wished I had been, but no.
  • I think my mum wet herself the day that I announced that I was going to try and get a weekend job in the Bridge House or something, as a waitress, to supplement my college income. ‘Er, your studies are far more important’, she insisted through her tittering. Hmmph.

There are times when having so many limitations can be a real pain in the ass, and it does get me down sometimes, especially when Alison asks me to skip, climb and run after her. But then I think, no, I’m not exactly like every other mum in the playground, why should I be? Time to focus on the positive:

        • I have a handsome husband and beautiful daughter
        • I can work, write and spend time with my family (although I’m still working on the balance)
        • I have a degree from Trinity College, where I learned to live independently
        • I love, and am grateful for, my life at the moment.

Don’t get me wrong, the way I am wired means that I’ll probably always be pushing the boundaries, trying to achieve the most unrealistic goals. If I achieve them, I will be delighted, and if I don’t, I’ll come to terms with that too.

But I won’t know until I try.

Writing is torture. Where am I going wrong?

Six months ago, I had a sudden epiphany. I’m a PRO for a disability organisation, and I used to really enjoy writing. I wrote a play when I was sixteen, and studied English for four years in Trinity College. I think the notion to write more was inspired by the fact that two (awesome) people I went to college with, Louise O’Neill and Ken Mooney (check out their work, it’s fab) have both had their books published in the last two years. Feeling more than a pang of envy, I decide to knuckle down and take writing seriously. I have an English Degree, how hard can it be, right? And yet, every night, I sit at my laptop and somehow no work gets done.

I’ve decided I’m sick of this cycle of unproductivity and that it’s time to pin down where I’m going wrong, in the hope of having some miraculous breakthrough and becoming the best writer in the world. Let’s study my writing routine.

9.45pm: Little one’s in bed. Time to knuckle down and maybe finish the journalism assignment I started three months ago.

9.55pm: There’s some really good stuff on thejournal.ie. ‘Five ways to tell if you are truly Irish’ and ’20 expressions only  the Irish know about’ is riveting reading. I’m sure it will come in handy for my upcoming article/blog about International Women’s Day, which took place a week ago.

10.10pm: Okay, stop messing around now. Close off Internet Explorer  and open Microsoft Word. I write/freewrite for about ten minutes every night, to get the proverbial juices flowing. I look at what I wrote the night before and think, God, was I drunk or something? Type more random shit in the hope that the good stuff is yet to come.

10.35pm: The Eastenders theme tune thuds behind the closed kitchen door. Feeling smug because I don’t watch it any more. I just annoy my husband afterwards by asking a million questions about it before bedtime. I know, deep down, he doesn’t mind (much)

10.45pm: Do we have any chocolate? It might give me the energy to concentrate.

10.50pm: I have eaten too much chocolate. Think a toilet break may be in order. That way I can wash my face and regroup.

11.00pm: I seriously need to lie down, but I can’t. I will persevere, even if it kills me. I shall not be defeated. People with disabilities do ‘triumph over adversty’ best, right?

11.10pm: Look over the ramble I did an hour ago, in the hope that I can pull something out of it. Yes, there might be, if my audience skim-read, or are incredibly interested in my to-do list for the week.

11.20pm: Yay! I am actually doing my assignment now! I am in the zone, I am truly a genius. I am finally waking up. I will persevere until this assignment is done. I pulled all nighters in college and I’m still here. Sure I had a baby three years ago and was able to push through sleep deprivation and night feeds. And all I have to do is either finish my assignment, or write a blog: something, anything. It should be easy in comparison to what I’ve had to achieve in the past. (I take a moment to admire the many times I’ve triumphed over adversity. Gosh, I’m just great)

11.35pm: Is the dryer finished now? *checks* No. It’s okay though, it gives more time to do some work and finish things off. Time really is a gift, hidden in the least obvious of packages.

12.00am: Are the clothes dry now? *checks again*. Yup! Thank God. I am bloody exhausted. I can’t feel my arms, but that’s okay. I’m just shattered from all the great work I’ve been doing for the last two and a half hours. I’m pretty great, when I think about it. I wonder would they cast a genuine person with a disability in the cinematic depiction of my life story. If not, I think Cate Blanchett might be an adequate substitute. (ahem, I haven’t given this any thought, honest). Oh well, time for sleep. Ahhhh.

1.30am: *wakes in a sweaty panic* Aggghhh! My assignment is still overdue! I haven’t written anything at all! What was I doing for two and a half hours?!

JP: (beside me when I wake with a start and probably kick him): You okay? What’s wrong?

Me: (deciding my husband deals with enough crazy from me without adding to it) Er,  spasm…

So, people, this is my writing routine. Where am I going wrong? Answers on a postcard please.

When no words are coming, what do you do? Write a poem about it!

No. Words. Are. Coming. Lately.

As I sit at my laptop, waiting for the words to come,

Thoughts crash together in my brain, becoming mangled and broken;

I try to stay calm and serene, but the right words elude me,

I feel they are watching me from a comfortable distance

Laughing and mocking me. I feel the frustration rising within.

It burns my soul and crushes my being. The words must come,

Without them I am nothing. I can say nothing, I can’t be defined

And if this is the case, can I really exist? So I persevere

Writing bullshit and nonsense and shaking my head,

This is not good enough. Who will this offend? Who can I impress?

Writing is not a choice, it’s a terrible infliction

That follows the victim forever, strangles them, drags them down.

And yet I can’t fight the urge to keep trying

To create something special, something small, in a world

Where the search for perfection threatens to destroy our humanity.

I take a deep breath and say,

I am not perfect; I am shattered and broken,

But I will continue to try, to search for the unattainable,

Because the search for the right words is as important as the finding,

And when they are found, there will be nothing more to say.

20 Experiences that you are likely to relate to if you have a disability in Ireland

Hi there. Yes, it’s yet another disability post. Sorry about that, but, y’know, after living with a disability since birth and working in the disability sector for ten years, you become accustomed to the challenges facing people with disabilities every day in their quest for equality, respect, or sometimes just to be left the f*** alone to live their lives. If you are a ‘normie’, that is a person ‘without disability’, you might be a bit offended, and for this I apologise; you can’t please everyone and all that.

Here we go:

1. You are going about your normal business in your local Tesco and are reaching for an item when a stranger who has been watching you for half an hour (following you around the shop actually) pops out of nowhere to grab said item, startling you and causing you to fall on the floor. You look like a tit because you’re a grown adult who is now lying on the floor. Now they are pulling you up by your arms which is a waste of time because  your feet are not ready and bam! down you go again. Why do they let you out on your own?

2. When people can’t understand you because of your speech impairment and they start talking slower to you: ‘I – can’t – understand – you’. Well, I can still understand you, you tool, it’s me who needs to speak slower. Incidentally, I’ve been reliably informed that if someone has a hearing impairment/is deaf/Deaf, speaking slower makes things worse as the person may rely on lip-reading. So there.

3. When you try to order a wheelchair accessible taxi (the phone numbers for these are known by a sacred few) and are told that the taxi doesn’t operate past 11.30pm (come on, even Cinderella got till midnight) or that you didn’t book it four months ago,so no dice Ha, thought you’d be spontaneous, didn’t you? You thought wrong.

4. Total strangers think it’s okay to come up and bless you. Sometimes they grab your wrist, holding back tears. ‘You should go to Lourdes’, they say. I’ve been offered money to go to Lourdes and be cured. Guess what, people? I’ve been to Lourdes, and I’m still disabled. I want my money back.

5. You decide to stop being a heathen and go to Mass. I recently went to a dinner held by a disability organisation and there was a lovely Mass beforehand. However, there is something slightly disconcerting about having a Gospel where Jesus healed all the lepers and cripples when 75% of your congregation use wheelchairs or walking aids. Not that I’m equating disability with leprosy, but still.

6. You are an individual! You are You! So why is it when you see a person with a disability on the street are you likely to think, ‘I wonder do I know them’, and if you don’t, ‘I wonder why I don’t know them’.

7.  You ring Eircom/the bank/AES/Electric Ireland in relation to your most recent bill and they have those stupid voice activated menus. And then, after being on hold for 45 minutes, they disconnect you because they can’t understand you.

8. On a related note, people hanging up on you because they think you’re drunk, which saps your self-esteem so much that all you can then think about is getting very drunk.

9. Eejits trying to push your electric chair because they’re too silly to simply say ‘excuse me’. Incidentally, there is a way to manually push electric wheelchairs which involves unlocking the mechanics underneath it, which is handy if it breaks down. However, I can easily move the chair myself if I want – it’s amazing! Also, I’m pretty sure that if I lifted somebody out of the way in a queue, I’d get punched in the face.

10. If you are foolish enough to get angry or annoyed at anyone in 7, 8 or 9 above, you earn the dreaded ‘angry crip’ badge. Nobody like the angry  crip, or to use the more alliterative term ‘crip with a chip’. You think the whole world is out to get you. It’s not, it’s all in your vivid imagination. Get a grip.

11. Because of the strong support network provided by IWA and CIL (thanks guys!), it’s common for people with disabilities to befriend one another through committees, social events, etc. Beware that if you decide to meet up with your mates outside these circles, and you all have disabilities, you are guaranteed to have at least one nosy Nelly come up to you and ask ‘are you all out for the evening? Isn’t it great to get out?’ Er, out from where? Do people still think that people with disabilities should be institutionalised? Scary thought.

12. If you go for a drink/coffee/meal with your husband/friend/Personal Assistant/Family member, they may well be asked what you want to order. This is called ‘does he take sugar’ syndrome (no, honestly). Basically it’s an assumption whereby  you as a person with a disability cannot make basic decisions for yourself because you are a complete tool. No point in asking you so. You may hope for the best.

13. A noun refers to a person, place or thing. Just to clarify: a wheelchair is not a buggy, wheelbarrow or chariot; a person who uses a wheelchair is a separate entity from the wheelchair (a liberation tool), a person who uses these aids does so to get around, not just to get a pass into using the accessible toilet.

14. Which brings me to this point: sticking a wheelchair symbol on a toilet cubicle door does not make it an accessible toilet. If you cannot get the door closed when you bring your wheelchair inside the cubicle, then the toilet is not accessible. I’m sure the world does not want to watch people with disabilities pee, but hey, if it does, who am I to judge?

15. If you’re a bit of a gambler, why not head off for the day on the train? Sure, don’t they even have accessible toilets now? (not bad toilets either). Don’t forget to remind the train station staff ten times to ring ahead to your selected destination so that they can have the ramp ready for you. But don’t be surprised if, when you arrive, there is no sodding ramp and the station weren’t informed you were coming. Sure it’s no big deal travelling to the next station, begging them to get the ramp and let you off, and travelling back. Sure what else would you be doing?

16. If you’re a real daredevil altogether, get the DART. My husband nearly had his arm amputated by the doors of the DART when they closed on his hand and  then the DART proceeded to take off. He was on the platform and he could feel himself being dragged alongside the train. It took six strong men to pry the door open and release his hand. The reason why my husband had his hand in the door in the first place is because my friend and I were waiting for the ramp which didn’t materialise. What did we do? See number 15 above.

17. If you have a disability, you have to be nice, polite and well-behaved all the time. Telling someone to mind their own business does not go down well. Don’t let them know that we are real people, sssh! Some people with disabilities, just like you normies, are generous, kind and friendly. But others are just downright assholes. And guess what? Just because you know one, doesn’t mean you know us all.
18. People think it’s okay to ask you about your sex life. This is just wrong on so many levels. Why do people want to know this information? I blame programmes like ‘Little People, Big World,’ a show where a family explores their everyday lives in the public domain. I don’t want to hear about your sex life, don’t ask me about mine!
19. Having children is a gift, and there is a mistaken assumption that our children will be burdened by us and will have to care for us because we have disabilities. This will never happen as long as  the government realises that parents can be empowered through the provision of services and equipment that put us in the driving seat. Simples!
20. Finally, having a disability is not the end of the world, but people tend to think that it is. They find it incredible that we can be devoid of resentment or anger at the world for the hand we’ve been dealt. I know I have days where I wish I had more energy and less pain, but I’m sure even normies have these days. So stand (or sit) proud and tall. You are brilliant. You are fantastic. You are the subject of much speculation and curiosity. Enjoy it. Jordan had to get her assets enlarged for that sort of attention.
And all you do is go about your everyday life!
Well done, you xxx

Creating a positive body image for our toddler daughters

What do our children see when they look in the mirror? How can we as parents ensure that they like what they see?

Anorexia and bulimia, disorders which are most associated with teenagers, are now being diagnosed in children as young as five. Therefore, it is crucial that we as parents encourage our children to love themselves and to define themselves by who they are and not how they look.

 

Being a parent in twenty-first century Ireland seems to be so much more difficult than it was twenty years ago. The media has become much more influential, with young children being exposed to thousands of advertisements relating to body image. However, it is all too easy to use the media as a scapegoat for the rise in eating disorders in young children. If we as parents want our children to develop a positive body image, we must ensure our children know how to love themselves.

My three year old daughter has been defined by her weight and her appearance from the moment she was born. At birth, Alison was 8lbs 4oz, ‘a fine weight’, and her skin was blemish- and eczema free. In the absence of a personality, this is how she was described. From about six months onwards, a phenomenon that psychoanalyst Jacques Lacan refers to as ‘The Mirror Stage’, Alison began to associate her reflection with herself. Henceforth, her appearance became an important part of her identity. She has been told by many people, including us her parents, that she is beautiful. Consequently, when Alison stands in front of the mirror, she likes what she sees.

Furthermore, Alison’s obsession with Disney princesses, especially the heroines of Frozen, Elsa and Anna, has greatly moulded her perception of what defines beauty. When she twirls around in Elsa’s trademark dress, her imagination allows her to become Elsa, Queen of Arrandale with flawless skin, perfectly groomed hair and ridiculously petite physique. Disney is renowned for their formulaic composition of the stereotypical princess, and despite the rise of feminism, Disney princesses continue to equate beauty with being painfully thin and blemish free.

Although USA Today reported in September 2013 that it is the mother who has the biggest influence over their daughters’ body image, responsibility for the development of positive body images lies with both parents. According to an article by Margarita Tartakovsky entitled ‘Dads, Daughters and Body Image’, daughters who have healthy relationships with their fathers ‘tend to be more self-reliant, self-confident […] and less likely to develop eating disorders’. One advantage of having mothers in the workplace is that fathers are spending more one-on-one time with their children. Tartakovsky recommends that fathers use this time to play with their young children, thus boosting their self-esteem, as well as teaching them to question the unrealistic body images presented to them by the media.

As a mother, my priority is to raise a daughter who is rounded, and who learns to love herself as a person, not just in terms of her appearance.  Sadly, not every mother shares my view. ‘Toddlers and Tiaras’ is a toddler beauty pageant show in the US, in which pushy mothers shamelessly dress up their daughters in over-the-top costumes, apply makeup and fake tan and train them to compete with other toddlers for a prize. Psychologist  Dr Allan Schwartz has criticised the show, saying that such shows ‘reinforce negative female body issues that result in eating disorders such as anorexia and bulimia [among children].’ In addition, these pageants serve to sexualise our toddlers, which is unacceptable, argues Schwartz.

Thankfully, it seems that Ireland is not ready for toddler beauty pageants. Voicing her opinion in response to the cancellation of toddler beauty pageants in Belfast and Cork earlier this year, Minister for Children, Frances Fitzgerald agrees that the sanctity of childhood needs to be protected by the State. In March 2014, the Seanad unanimously passed a motion to ban all child beauty pageants in Ireland. Included in this motion was an appreciation of ‘the difficulties and pressures faced by children and parents as the distinct space between childhood and adulthood becomes increasingly blurred through media, advertising and popular culture’ as well as a belief ‘that every effort must be made to protect children and childhood against sexualisation’. While Ireland may not be ready to embrace the absurdity that is the toddler beauty pageant, it cannot be denied that we have become a society obsessed by external beauty, and if we fail to challenge this,  we run the risk of our children developing eating disorders in later life.

Ultimately, our children are not princes and princesses. They are unique individuals, who need to be allowed to explore who they are, both inside and out. Here’s how we as parents can promote the development of a positive body image, according to Margarita Tartakovsky and Elizabeth Ward, who is a dietician in the US:

  • Be a good role model: refrain from saying things such as ‘I need to lose weight’ in front of your toddlers, and do not openly obsess about your toddler’s weight
  • Encourage a healthy diet;
  • Limit the amount of screen time. Discuss advertisements’ and programmes’ treatment of body image openly and honestly, and point out unrealistic portrayals of body image;
  • Teach your child that everyone is unique, including in their appearance;
  • Spend time playing with your child, which will boost their self-esteem. Exercise releases endorphins which promotes happiness.
  • Focus on other attributes and talents other than appearance.

National Eating Disorders Awareness Week runs from 23 February – 1 March 2015. For more information on eating disorders in children, visit www.bodywhys.ie.

A Marriage of Minds

Today, I will celebrate my thirteenth Valentine’s Day with the same person I spent my first Valentine’s Day with. I was eighteen and a complete introvert. I wasn’t in the ‘popular’ group in school, I kept very much to myself, and the only makeup I had was a stick of concealer I’d bought when I was sixteen (in fact, I think I may still have it somewhere). As I smeared it on my face in anticipation of my first ever Valentine’s date, I remember thinking that it would probably be my last, and crying silently in front of the mirror.

Why? Because I had done the unthinkable.

I had fallen in love. This made me feel extremely vulnerable.

I now know that it’s not a bad thing to fall in love with someone, but that wasn’t part of my original plan. When I was sixteen, I had no intention in getting involved in a long term relationship. My dream was, and still is, to become a writer, only I had envisioned a grottier existence with yellowing paperwork and a couple of cats thrown in for good measure. (Think crazy cat lady from The Simpsons). This is what I was working towards. A relationship would be nice, but probably unlikely, given that I was the biggest nerd/introvert in the world, ever. And believe it or not, the words ‘disability’ and ‘sexy’ are not together in the thesaurus.

The story of how JP and I met is embarrassingly cliché, in the disability world at least. I met my husband in a place called Clochan House. For those of you who don’t know where that is, it’s an uber-cool holiday centre with swimming pools, in the centre of Tullamore. (It is not, er, an extension of Tullamore hospital). When I walked in, there he was, quite simply the most handsome thing I had ever seen. He had the widest blue eyes and the gentlest features. And he was approachable, chatty and good-humoured. I knew then, that even if we did not get together, that my life would never be the same.­

It took nearly two years for me to gather the courage to ask him out. We were on a group holiday in another, more aesthetically pleasing respite centre. Having never asked someone out before, I poured my heart out to him like a gobshite. It was something like you’d see in a Disney movie if, after the princess declared her love for her prince, her beloved said ‘okay, let’s give that a go and see what happens’. Sooo romantic. I never wanted the ground to open up and swallow me as much as I did that day. But I’m still glad that I didn’t say something like ‘I want to get off with you’ as one friend suggested (though I’m pretty sure that’s what he heard).

The months that followed were awkward. On our fourth date to the cinema, my mum dropped me off. I had hoped she would stay in the car and do her embarrassing wave and then it’d be over, but no. Instead she walked up to JP outside the cinema, no hellos, no ‘I’m Sarah’s mum’, and said, ‘If you ever touch one hair on my daughter’s head I will hunt you down like a dog and kill you’ and walked off. JP had been holding my hand and he quickly withdrew it. Then we sat in the cinema, side by side, not touching or talking. We didn’t have a date again until before Christmas 2002. This was October. We didn’t even talk over the phone at this stage; all communication was via text. One Saturday, the toe-rag had the balls to come over from Laois to Tullamore after cancelling yet another date, and he later confessed by text! ‘I’m sorry, I’m nervous’, he said. My reaction did nothing to calm these nerves!

After Christmas 2002, the casual relationship turned serious very quickly. It was the year of my Leaving Cert, and from the outside it may seem like the worst time for a teenager to be in a super-serious relationship, but for me, it couldn’t have come at a better time. I was studying relentlessly, killing myself physically and emotionally, and were it not for JP coming down every weekend, I would have ended up in a hospital. We made each other laugh, we liked the same music, we would talk long into the night/morning (sometimes these were like Ross/Rachel style conversations, the ‘where are we?’ conversations). He told me in these early days that he could see us getting married. The closeted cat-lady in me was looking for the nearest exit. In the strangest of twists, he’s the loving, dedicated partner while I’m the commitaphobe.

JP and I did a lot of growing up together. We went out a lot, as young ones do, especially when in the company of mutual friends. My favourite memory is our first holiday alone together to Blackpool, where we stayed in a B and B around the corner from the beach. Of course we totally underestimated how much money we’d need (plus the bank robbed us for each ATM transaction), meaning that we had £10 by the Monday of our holiday. And we weren’t going home till the Wednesday. To my disappointment, I found kicking the wall beside the ATM didn’t help.

So, let me tell you about my husband. JP is quite possibly the most generous guy I’ve ever met, not just financially but in terms in thoughtfulness too. I remember for our first Christmas together, he got me a white gold chain, a beanie teddy and a couple of CDs. I had got him a digital alarm clock. I don’t think he was impressed.

JP is (well, was) a serious Garth Brooks fan. ‘Unanswered Prayers’ is his favourite song. He always wanted to see GB live in Dublin. I’m sure the irony that this particular song is his favourite did not escape him in July 2014.

JP is anal about two things. Firstly, the ‘Coffee-sugar-tea’ containers must be in that order and facing out. Secondly, the dining chairs must be pushed in neatly when not in use. Sometimes, I deliberately leave them out or swap the containers around to mess with his head.

Working sometimes late hours means that JP sometime ends up watching crap on telly to unwind, such as ‘Judge Judy’ and ‘Road Wars’. Well, that’s his excuse for watching them anyway.

JP is the romantic one in the relationship, and I’m the one who laughs at any clichéd attempts at romance.

I am very thankful that John Paul Fitzgerald came into my life and I know how lucky I am to have someone to share all of life’s adventures with. While I’m particularly grateful that he has given us our beautiful daughter, I will always love him for who he is and will always admire him for his blunt honesty and his dedication to me, our marriage and our family.

Happy Valentine’s Day, honey. Sorry about the embarrassing blog but I couldn’t fit all of this into a card XXXXXX

Happy birthday, dear Ali!

My daughter and my proudest achievement, Alison, turned three years old at 11.52am today. It feels weird to be typing that sentence for several reasons. Firstly because up until I had Alison, I was on a mission to prove that I  was severely allergic to small children. I mean, they were cute and all, but I would have bawked at the idea of changing nappies or mopping up vomit. I can’t face cleaning my own. Secondly, because three years of my daughter’s life have passed by so quickly, and although I am delighted to be rid of the nightmares that were colic and reflux (aka, the Spawn of the Exorcist), I know that all I have now are memories, good and bad. Thirdly, because I want to freeze her time right now. I want to always remember her as she is, right now.

Alison Mary is now three. We named her Alison after one of mum’s favourite singers, Alison Krauss, because mum had died in 2009 and I didn’t particularly want to call her Una, plus we liked the name. Depending on what mood we’re in, we call her Alison or Ali. Alison is freakishly tall, and there’s no doubt that she will be taller than me by the time she’s nine. Her hair is grand when it’s washed but turns into a  mat of knots within 48 hours. Cue detangler spray and a lot of cursing from whichever parent has pulled the short straw  to comb out said mat.

Ali is intelligent. Well, I think so, so it must be true. She said ‘hi’ at eight weeks, and could count to five at sixteen months. She knows most nursery rhymes, and she also knows that she can get around daddy easier than mummy. She can count to ten in Irish now, thanks to playschool. She can spell ‘Tesco’, and knows daddy works there. I don’t know much about kids but I do think this is amazing.

Alison is currently a ‘Frozen’ fanatic, and her note-perfect rendition of ‘Let it Go’, complete with actions is highly entertaining. She loves singing and dancing, although I find the bum-wiggling a little disturbing. She also loves costumes (we have a future actress on our hands, perhaps?) , and would be equally happy dressing up as Elsa or Bob the Builder. Ever the diva, Alison loves being rescued from burning buildings (aka overturned toy boxes); the trouble is once you rescue her once, you have to rescue her ten thousand times.  Sigh.

I could describe what it is about Ali that I love so much until I’ve bored myself, but instead I’ll let the following anecdotes give you a better insight into her world.

1. Ali accidently walked in on her daddy while he was using the loo the other day. Next time she went to the toilet, she pulled down her pants and stood beside the toilet.

2. Ali loves sucking her thumb. And the more you tell her not to, the more she does it.

3. Ali doesn’t go to sleep at night until she prays for every single person she knows. Including someone called cucumber. We have no sodding idea who that is. When we ask her, she just smiles. I’m always a little nervous at this point, waiting for somebody to hop out of the wardrobe.

  1. Ali loves teddy bear picnics, at which she is always the guest of honour. She probably sees a picnic fit for a queen; what I see is a pile of toys. ‘Surprise!’ she yells, delighted with herself.
  2. Ali is fascinated with eyebrows and their texture. She loves rubbing eyebrows, and if she rubs your eyebrows, it means she likes you!

I could go on, but don’t worry, I won’t. What I’m trying to illustrate here is that Ali is very much her own person, and each day I fall more helplessly in love with her. I am so grateful to have the opportunity to be her mum. She is so loving, patient (of me), understanding and kind that I sometimes wonder who is the mummy, her or me? Honestly, I think I need her more than she needs me.

So, happy birthday to a truly remarkable child and the best daughter any mother could possibly dream of. I promise to love you and be thankful for you every day, because

Baby, now that I’ve found you, I won’t let you go,

I’ve built my word around you, I need you so,

Baby even though,

You don’t need me, you don’t need me, oh no. (Alison Krauss)

Thank you for bringing so much happiness into all of our lives xxxx

Just take it easy…!

I’ve been sitting here for the last half hour staring blankly at my laptop, opening website after website, reading dodgy articles on thejournal.ie. That’s not why I sat down. I sat down to finish off a journalism assignment that I started two months ago. This sounds like I’ve been dragging my heels, procrastinating this assignment. I have not. In fact, I have researched four thoroughly different articles, all half-written, because I couldn’t decide which one I wanted to write more. Don’t get me wrong: this information will undoubtedly come in handy on a later date. But this article was going to be amazing. I mean award-winning amazing. That’s not quite what I see when I read it back. I’m now afraid to open it in case I feel an uncontrollable urge to delete the whole lot (again). I’m a relentless perfectionist to the point of neuroticism: in other words, I think I am losing my sanity.

The first half of my life was dominated by people pushing me to achieve my potential. I’m not saying that this is a bad thing at all: if it wasn’t for these people (my parents, teachers, Occupational, physio and speech therapists, etc), there is no way that I would be sitting here in my own house writing this blog. Somewhere along the way, I took over, setting ridiculous standards for myself. I wrote a play in Transition Year and later helped to produce it when it was staged by my classmates, some of whom were less than thrilled when they landed male roles (it was an all-girls school). It took the best part of a month to recover from  the exhaustion and my mental health was in tatters. Did I take it easy that summer? Nah! I instead got a summer job with the Tullamore Tribune, where I worked until two weeks before fifth year started, putting aside the money for a holiday in a feckin respite centre in Roscommon (not Ibiza) a year later. I know what you’re thinking. I’m wild. Woo! Then fifth year saw me abandon all forms of human contact as I threw myself into studying for the Leaving Cert. Worried by the prospect of ending up permanently unemployed, I spent eight hours a night (4-12) studying in Fifth Year, much to the despair of my broken-hearted parents who were actually expecting me to collapse dead on the floor with exhaustion. I have  to do this, I would say to myself. I have to prove to everyone what I am capable of. I will not be defined by my disability.

Somehow, I managed to dodge a prolonged stay in a facility with padded walls and men in little white coats and I made it to Trinity College. Phew, I thought, I can relax now. And I did for the first two years, until my marks counted for something, and guess what? The  old Sarah  came back in third year, and so did that irritating voice. You got a scholarship to study here, for God’s sake. There’s no point in doing things by halves. And without the nagging of my parents and (then) fiancé (now husband) I was free to stay up  working till 2-3am on  essays, presentations and my dissertation. I lived off sugar and cereal like every other student. I would turn up for tutorials, bleary-eyed, wondering which book was being discussed today (I only read a selection of novels. Anyone on that course-and you know who you are- who read every prescribed novel/play please step forward for your gold medal). Although I let my hair down a little, I didn’t exactly have a roaring social life in college. I will admit that I did go on three foreign holidays during my college years with friends from home, but the details of those are a little hazy (though not nearly hazy enough)!!

Earlier this year, I was thirty. Like many, I looked back on the aims I  had set myself for when I reached the  big milestone: have a  Master’s degree in Journalism and be actively working in the field; maybe write a novel or a book of poetry;  do a Masters in Disability Studies. None of these were goals I ever reached, and sometimes I feel as if I’ve let myself slide into complacency. On the other hand, I have such a wonderful husband who supports everything I do and without whom I’d be lost, my daughter who makes me smile from the start of the  day to its end with her hilarious antics and a lovely place to call home. I am so lucky, and it wouldn’t hurt me to stand back and count my blessings every once in a while.

Ugh, look at this blog. Look at the dust on the mantelpiece. Look at the laundry piling up in the back hall. Maybe I’ll do some dusting. Maybe I should fold more clothes. Or maybe I’ll just … take it easy and watch some TV and deal with it all tomorrow. It will be still there tomorrow, along with my unfinished assignment.

Maybe, one day I’ll learn that everyone has their limitations.

That nobody is perfect.

Sometimes I  need to take it easy, and hopefully one day, I’ll be okay with this.