Category Archives: health issues

1-7 May: Maternal Mental Health Week

Posted on by
2

I was just scrolling through Facebook this evening, you know, doing some important web-based research, when I saw a post saying that it was Maternal Mental Health Week this week (May 1-7). According to talkingmums.com, up to one in five women experience mental health issues either during pregnancy or in the year following birth. Yet, out of these women, only 7% of them are typically referred for specialist help.

How many of you, like me, have suffered from PND, yet never admitted it to a doctor or health professional? How many of you out there are still suffering?

I’ll never forget the moment I knew for sure I was suffering from PND. Alison was only three months old and we had just discovered (or rather, the Public health nurse finally believed me) that she had a cow’s milk allergy. We had Ali put on special formula. She started gaining weight and became the happiest baby ever, sleeping through the night and everything.

I should’ve been happy, but I wasn’t. Relieved, yes. Happy? No.

All I wanted to do is disappear. I was just waiting for the right time.

I had this vision of having PND as standing over your baby’s cot with a pillow in your hand or wanting to throw your baby down a flight of stairs. While I appreciate that some women feel like that (and this doesn’t make you a bad person – you’re unwell and need help), I didn’t. I felt that my daughter was the most perfect person in the world and that she must have done something truly horrible in life to end up with a mother like me.

I didn’t know that PND meant looking in the mirror and being repulsed by the pathetic specimen staring back.

I didn’t realise that ignoring it wouldn’t make it go away. I ended up in the doctor with chest pains, shoulder pains, stomach aches and yet the doctor couldn’t find physiological reasons for any of them. She prescribed painkillers which didn’t seem to help. I always denied feeling down or depressed. Big smile on my face. Sure what would I have to be depressed about?

By May 2014, I could barely get out of bed. I wasn’t eating properly. I was crying all the time; it was all  I seemed to want to do. In order to get from one end of the day to the other, I had to measure my time in hourly units. Then half-hourly, and towards the end, minute by minute. If I can hold myself together for ten more minutes I’ll be grand, I would think to myself. But of course, I wasn’t grand – far from it.

When I took time off work, I considered my treatment options. I know it sounds ridiculous and shallow, but the thought of going on antidepressants filled me with dread. I wasn’t too keen on counselling either as my previous experiences were quite negative. But I knew I had to do something, so I started writing. Writing how I felt. Writing about my flaws. Writing about my talents. Suddenly, I felt liberated. I’m not recommending this course of action over medication or counselling, but writing was my saviour. It’s something I enjoy, am (reasonably) good at and writing my thoughts and feelings down helped me to own them, and then let them go.

Postnatal Depression has changed me into someone different to who I used to be. I am more sensitive now, and I hate myself for it. I’m still conscious of how people perceive me as a mother. In addition, I now have to make a conscious effort to look after my mental health, to recognise the signs of feeling sad or overwhelmed and act on them before they take over. I also have to be careful. I love helping people, but I have a tendency to internalise their problems to the point where they become my own problems. Sometimes I need to step back, say no and this is hard. I hate doing it.  But I have to remind myself that if I don’t mind myself, I can’t help others.

This week is National Maternal Mental Health Week, and while it’s great to have a platform to write about PND and mental health, the issue of maternal health shouldn’t be confined to a mere seven days of the year. We need to open up the conversation to all mothers, make them feel supported and not feel alone. When I published my long preamble about my experience with PND, I was convinced that either no-one would read it or that it would be dismissed as being a tad melodramatic. What I didn’t expect was the hordes of girlfriends, as well as women I’d never met, emailing me their stories and reminding me that I was not alone. Thanks to those women for validating my story and for making me feel that my depression was completely normal.

And if you are reading this, and you are silently suffering from pre- or post-natal depression, you are not alone either. Look after yourself and get the help you need. Trust me – even mothers who appear to be perfect can suffer silently.

You are worth the help. And after the fog lifts, life becomes so much simpler.

You are wonderful. You are beautiful. You are everything to your children, and they deserve you just as much as you deserve them.

But you can’t pour from an empty cup, so look after yourself.

Advertisement

Cripping Up: Useful Exercise, or a load of Crap?

Posted on by
1

Earlier today my daughter, who is growing increasingly aware that her mummy is different to other mummies, asked me if I could walk properly when I was a little girl. ‘Nope,’ I told her, ‘My walking was pretty rubbish when I was a child too, but I didn’t need a wheelchair.’ She was silent for a second, then she said, a tint of sadness coming into her otherwise unblemished face:

‘Some of the girls in my class make fun of you. They say “ha ha, your mummy can’t walk properly.”‘ For a second, my heart stopped. This is the conversation I’d dreaded having with my daughter since the day she was born.

As nonchalantly as possible, I prodded. ‘And what did you say?’

Alison shrugged. ‘I said “don’t make fun of my mummy, it hurts her feelings” but they didn’t stop. I didn’t like it mummy. I would never do that to anyone.’ She was so absolute in her defence of my that it made me want to cry. ‘Mummy,’ she continued. ‘You know I don’t care if you can’t walk properly, or you’re in a wheelchair. I love you and you’re the best mummy.’ I sat, reeling. Where the hell had all this come out of, all of a sudden?

‘School,’ my friend said when I told her the story. ‘Kids learn all sorts from each other at school. They learn to see things differently, to question things, and most worryingly of all, they trust what each other says.’ This isn’t my first encounter with schoolkids of course; once upon a time, in the very same school in fact, I had the honour of dealing with this sort of thing first hand. And while some of the comments hurt (and they did, because I was an impressionable child, just as Ali is now), others were downright hilarious. One particular time I caused grievous injury to a classmate who was enjoying imitating my walking and consequently whacked herself off a door. ‘I never do that,‘ I laughed. And bingo, humour became my new method of self-defence. To be fair, it’s lasted pretty well.

But what has always interested me, even from my prepubescent years, is how people tend to be so fixated on my impairment and how they see it as problematic. ‘Do you ever wish you didn’t have Cerebral Palsy?’ is a question I’ve been asked more times than I’ve had hot dinners. My answer has always been the same, but it’s only in recent years that I understand why I’ve always said no. Cerebral Palsy, and any other disability for that matter, only becomes problematic when others are uncomfortable with it. Impairment and disability are different things. Impairment is a condition or diagnosis, and disability is the collective term for physical and attitudinal barriers facing people in society. I’ve lost you now, haven’t I? Allow me to explain.

My impairment wasn’t the reason why gaining entry to mainstream school was a battle, but the lack of supports available was.

My impairment didn’t stop me reaching third level education because I was enabled through Assistive Technology and Personal Assistance to do so. I used these as tools to unlock my potential.

I built a ramp on both sides of my home so  that I could consequently get a wheelchair to enable me to be independent and get out of the house. A lack of ramps would hamper my freedom, not my impairment.

My heart always sinks whenever I hear the words ‘disability awareness training’ because it often involves so-called ‘able-bodied’ people ‘cripping up’ to try and get a feel for what the world is like for a wheelchair user. With all due respect to those  of you who think this is a good idea, it’s not. Often, it involves able-bodied people using oversized or unsuitable wheelchairs and trying to navigate a physical environment. It’s an unrealistic portrayal because wheelchairs for full-time wheelchair users are designed for their specific needs. While doing something like this, you get a flavour of what it’s like to use a wheelchair to get around and the physical challenges involved. However, you cannot possibly be expected to know what it’s like to carry the burden of a history of hundreds of years of neglect, discrimination and degradation.

It creates awareness, as Kathryn Thomas did on The Late Late Show on Friday 7 April. Everyone knows her face. She was selected to create awareness of the barriers facing wheelchair users in Dublin. It got a great response from many people, saying that it was great to see this issue being highlighted at last. The reality is that people with disabilities have been saying these things for years. And yet, many wheelchair users, including Louise Bruton, who reviews access in Dublin for her blog, Legless in Dublin, was not asked to participate. She wrote an article for the Irish Times before the Late Late aired in which she said: ‘These pieces are a gimmick and if they help change the minds of a few people, then that is great, but they remove us from the discussion. By doing this, we are passing the baton and the opportunity to go deep into the experiences of a wheelchair user is missed.’

Blogger John Doyle was more direct in his criticism of this approach, saying in his blog: ‘Would your celebs paint themselves black and claim the understand racism? No they would not. Did John F Kennedy mimic being a different ethnicity to highlight racism? No he did not. He acted with legislation because he lived in a country that had one rule equality for one section and a rule of inequality for others’. We still haven’t ratified the United Nations Convention of Rights for People with Disabilities, which would mean so much more than a celebrity endorsement.

And why do we need celebrities to highlight the issues that we disabled  people have been discussing for years? The answer is simply we don’t – but for some reason our voices seem to only matter when they’re endorsed by politicians, celebrities and the likes. I wonder is this because people don’t want to know about the nitty-gritty of the discrimination disabled people face, or is it because they feel they can relate to an able-bodied person better? If that’s the case, will our voices, our own voices, ever be heard?

Because I don’t want my daughter answering questions about her ‘different’ mummy forever. I hope that one day she will be wise enough to say ‘You have a question about my mummy? You ask her yourself. I don’t speak on behalf of her, or anyone else.’

Apologies for absence!

Posted on by
Reply

Hello to my adoring fans! I hope you are all well.

Hoping to get my blogging mojo back soon (probably will as soon as I’ve posted this, lol) but may not be around for a week or two owing to other projects like my first commission of the year (Watch this space), trying to submit something for A Date With An Agent (for which I fully expect to be selected of course) and another blog in progress for an activist group called By Us With Us. We’re a new group made up of  people looking back on the history of the Independent Living Movement and joining together to face the future. You can visit our blog here.

But don’t worry: as Arnie says, I’ll be back…….

The Secret Agony of Postnatal Depression

Posted on by
3

WIN_20151128_192444

(Me and my little princess)

Sometimes the hardest thing about being a writer is writing about real feelings, about your reality. Once the words are out there, you’re opening yourself up to merciless scrutiny and possible criticism. But I’ve decided that in order to be free of the most horrible experience of my life, I have to write about it and share it with you. And I’m so happy that I’m finally in a good enough place to do it.

(written Wednesday 22 June 2016)

It is one o’clock on a Wednesday afternoon. All is quiet, now. We’ve spent the whole morning talking to a lovely woman who is interested in our story of how we, two parents with various degrees of Cerebral Palsy, found the whole experience of having Alison and whether we would have any advice for the so-called medical professionals if they ever come across a case like ours again.

We are not a ‘case’, of course. We are people. Real people with real feelings. Talking about how we were doubted when we had Alison and when we brought her home first is always draining. As a person who loves to bottle things up and have that bottle explode at the most inopportune times, talking openly and honestly about what is going on in my head is something I hate to do.

So why now? Well, maybe it’s because no matter how hard I try to deny it, the fact that I had postnatal depression will always be part of my identity. I will never forget how I was made to be so afraid that I had to go through it alone, even though I know that some friends tried to help me. They couldn’t of course. I had to help myself.

I was nine weeks pregnant when I self-referred to a physiotherapist and an occupational therapist. I wanted to be the best for my baby, I wanted to improve. I wanted to show people that I was capable. Deep down, I wasn’t sure if I would be. The last time I’d cared for a baby was when my little sister Alex, six years younger than me, was born. Dressing and feeding a doll wasn’t going to be the same thing, I knew that.

Anxiety lingered where excitement should’ve resided. Our Public Health Nurse started visiting when I was twelve weeks pregnant, asking questions that I didn’t know the answer to. How are you going to feed the baby? Change it? Carry it? (Apparently my plan to wheel the child around the house in a buggy was inappropriate; a sling was more suitable. How was I going to get the baby in and out of a sling?) It didn’t really matter – they had come up with a solution, they knew best. Sure what did I know? I wasn’t a medical expert, like they were.

But if they were medical experts, then I was treated like a medical marvel. We’ve never come across this sort of situation, I was told countless times. What did they mean, this ‘sort of situation?’ Surely I was just a normal woman, having a baby? I was told that I’d have to be under general anaesthetic to be sectioned, and it was only the week before the section when we discussed our concerns with the anaesthetist that a spinal was considered. Then there was the apparent issue of me being  left alone with the baby. I spent months trying to illustrate how, if I got help with basic tasks such as bottle making, washing and cooking, being alone would not be a big deal. I later heard about how everybody was apprehensive, watching me with bated breath, expecting me to fail.

Alison Mary Fitzgerald was born on the 9th February 2012 at 11.52am, weighing a sizeable 8lbs 4oz. She was, and remains, the most beautiful person I’d ever met. As I held her in my arms I was blown away by her huge blue eyes, her physical strength and her flawless, unblemished skin. Immediately after the birth the lactation consultant showed me how to breastfeed. I hadn’t really considered breastfeeding, nor had I any interest in it, but Alison took to it easily and I watched her ‘help herself’ it occurred to me that if I could do it, then I would always be useful. Even with my horrible, mangled body I would still be useful.  Even if I couldn’t do anything else for her, I could do this. And if I  was her main source of food, then no-one could take her away from me.

Warped thinking, yes, I know. But I wasn’t thinking straight at this stage anyway.

I was a fog of hormones, crying from hormones and  tiredness. But finally, everything was in place. We became claustrophobic in that small hospital room, the three of us, and by Monday, all I wanted to do was go home. There was no medical reason why this couldn’t happen. John Paul was staying with a friend and that morning, it was just me and Alison in the hospital room. I looked into the little cot and sang ‘Baby, now that I’ve found you’ to her, studying her little hands, her thick head of hair. I promised her there and then that I’d always do my best by her, that I’d always love her. just as I was doing this the anaesthesist came in, grinning.

‘Do you remember calling me a legend last Thursday?’ he asked. ‘I recorded it in case you don’t!’ He checked my stitches, which were healing  nicely. ‘So are you off today? There’s no reason why you can’t. You’re recovering well.’ My heart soared. The ward manager agreed.

‘You’re doing really well,’ she said, ‘and we need your bed. What time is your husband coming in?’

‘Ah, soon,’ I said, packing my belongings. ‘Can’t wait to go home!’ But I was nervous too. I’d never handled a newborn baby before, and here I was, her primary caregiver, and like so many first-time mums I didn’t have a clue what I was doing.

The trouble was that I wasn’t like other first time mums.

I was just after feeding Ali when the head midwife came in. ‘I’m going home today, aren’t I?’ I said excitedly, gesturing at the half –packed suitcases on my bed. The midwife smiled, her lips pursed and shook her head.

‘Not today,’ she said. ‘You see, we have… concerns that you might be a danger to your baby, that you might drop or hurt her. What we’ll have to do is ring your social worker, your public health nurse and the Centre for Independent Living again and just verify what supports you’ll be getting, see if they think you’re ready to go home.’

‘But I’ve already done all that,’ I cried, my words an indecipherable screech. ‘Everything’s organised. I spent my whole pregnancy getting everything ready. How can you say we’re not ready? I can’t believe this is happening…’

The midwife shook her head. ‘I can’t understand what you are saying,’ she said. ‘Can you take out your phone and text out what you’re saying, like we agreed last week?’

Tears fell out of my eyes as I looked at the perfect sleeping baby beside me. I could hurt you, I thought to myself. I shook my head dismissively and instead rang John Paul, not letting Alison out of my sight for a second.

‘You have to take her,’ I sobbed down the phone. ‘There’s no point. They won’t let me take her home. You take her, you look after her. I’m obviously the problem, so you take her.’

A startled and breathless John Paul burst into the hospital room fifteen minutes later. ‘All right?’ he said casually, looking at the nurse. ‘Sarah said that you won’t let us home with Alison…’

‘Oh no, that’s not what we said at all,’ the midwife gushed. ‘We merely wanted to make sure that you two would be fully supported when you got home. So the Public Health Nurse will be out to ye every morning…’ I waited for John  Paul to protest angrily, but he remained calm. ‘And she’ll be a great help, no doubt. We’ve also ordered Sarah a cloth sling which she can use to carry Alison in her wheelchair. It’s sixty euro, so…’

‘I’ll get that,’ John Paul said confidently, although I knew by his reaction  he’d no idea where it’d come from. ‘And all going well, we’re going home tomorrow?’

‘Of course,’ the midwife said, although I felt like a royal idiot at this stage.

Getting home, away from the maternity hospital, felt surreal. We arrived at our house where my P.A. had decorated the house with ‘It’s a girl’ signs. Our family was waiting inside, armed with presents for me and Alison. There was even lasagne, and cake from friends. It was lovely. But I still felt like crap, as if I’d escaped from prison and that at any minute the midwife would come and try to take me back.

And so I began the journey of motherhood constantly feeling like an imposter. As those early days wore on, I began to feel tired. The physical effort of breastfeeding took its toll, but I persevered nonetheless, determined to do it. It took me forty-five minutes to do a nappy change and outfit change, and the fact that Alison had reflux and spewed during each nappy change didn’t make the process any faster.

********************************************************************

My aunt informed me that now that Ali was born, I would always chart life events through the life of my child.

Alison was eight weeks old when I started to feel odd. I wouldn’t say miserable, and I didn’t think I was depressed. But I definitely didn’t feel like myself. I put it down to exhaustion, physical and emotional, as well as recovering from, as my aunt put it, major surgery.

One night, when John Paul was at work, I sat looking at  Alison in her buggy. She was crying frantically and I was bent over her, ready to pick her up. Suddenly I felt light-headed and the room started spinning. All I could see was Alison’s head smashing against the floor, blood splattering everywhere. They were right, I thought with trepidation, I can’t do this. I’m going to hurt her. I phoned my friend, and when she arrived I was holding Alison in my arms, shaking with the relief that she was okay, and that I hadn’t hurt her.

But one day I will, I thought, and they will take her off me for sure. It’s only a matter of time.

I say ‘one night,’ but in truth, there were many, many nights like this. And if it weren’t for this friend, I don’t know if I’d be writing this blog right now. She saved me from myself more times than I can count.

***********************************************************************

As part of my bail conditions, the Public Health Nurse came nearly every day, for nearly six months. We would try to look together, calm, pretend to know what we were doing. However, Alison had severe reflux which gave the Public Health Nurse the perfect excuse to drop by, sometimes twice a day, often unexpectedly, to weigh her. The house could be a tip. I could be wrapped in my purple and white bathrobe, curdled milk encrusted in my hair. To this day I firmly believe that Ali picked up on my nervousness, which in turn exacerbated her reflux to the point where she was throwing up whole feeds. She also had colic, but that was nothing compared to the pressure I felt to show people that I was able, capable.

‘Do you think it’s a cow’s milk allergy?’ I asked one day, as my heart ripped in two watching Ali spew another feed over yet another newly changed outfit. The Public Health Nurse smiled and waved her hand dismissively.

‘I doubt it,’ she said. ‘Do you know how rare that is?’

By Friday of that week, I’d had enough of this shit and brought Ali to the doctor, demanding a letter for the A&E in Mullingar, that I wasn’t going to be fobbed off any longer. It was the June Bank Holiday of 2012 and the hottest weekend of the year. We spent it in Mullingar hospital where the doctor finally prescribed Ali Nutramigen, a soya-based formula. I felt like kissing his feet in gratitude. Between the Saturday and the Monday Ali gained four hundred grammes and the heart-wrenching colic dissipated instantly. The colour came back to her face  and she became a happy baby, full of chat and smiles.

‘You see?’ my husband said as we came home from the hospital. ‘You are a good mother. You know exactly what you’re doing.’

I closed my eyes tightly and desperately wished it were true.

***********************************************************************

I went back to work in August 2012, for fifteen hours a week. Fifteen hours a week filled with anxiety, wondering how she was. Fifteen hours a week that I had to hand her over to someone else. Some days I would look forward to the break, until Alison left the office with the childminder. I knew I couldn’t have it both ways, but it was still so hard. It’s something I still struggle with, but I suppose every mother does, to some degree.

It was around this time that a horrible, mean voice moved into my headspace, and I was feeling too low and vulnerable to tell it to fuck off. Whoever this voice was, he/she/it was intent on destroying me. It was the voice that told me that I was going to drop Alison whenever I picked her up. The same voice told me that Alison was not safe in my care, that she would resent me as she got older because I wasn’t a normal mum. If I spilled something or knocked something over, the voice would never fail to criticise.

Alison turned one on 9th February 2013, and I’ve never felt relief like it before or since. Relief that I hadn’t caused her any serious harm or injury. Relief that she was home with us, celebrating her birthday in the company of friends and family. Relief that the first year was over. But I also felt anger. Angry that I had lost so much enjoyment with her because I was constantly worried about what others thought of me and my parenting skills. Angry that I would never be good enough for this little girl, no matter how hard I tried.

As Ali bent over her birthday cake and grabbed the flame, burning her little hand, I burst into floods of tears in front of my friends and family.

‘Don’t worry,’ my dad said, hugging me tightly. ‘Her hand is fine. She didn’t burn it too badly.’ I looked up at him and smiled, relieved that he didn’t know the real reason for my tears. Ali hadn’t been afraid to grasp that candle; she’d been strong and fearless. I’d felt that way too when I was pregnant. Now, all I felt was constantly afraid and so, so useless.

And my biggest fear was that somebody would guess how I was feeling, and threaten to take my little girl away from me. So I stayed silent, plastered on a smile and threw myself into the monotony of work and my daily routine.

***********************************************************************

I started to have thoughts of suicide, as they say, when Ali was eighteen months.

I’d no intentions of going through with anything, but I had it all carefully plotted out in my head, just as a back-up plan. Knowing it was there made me feel safe, happy even. (Don’t worry, there is no backup plan now. If there was there would be no way that I would even mention it on a blog).

John Paul and I would have a row, and I would storm out of the house, vowing never to come back. Sometimes I would take pills with me. Sometimes I would storm out and walk around for hours. I would come back. John Paul would say that I needed help, but we would both agree that we could not live under the scrutiny of nurses and social workers again.

He was tired, as was I. tired, and alone. So, so alone.

***********************************************************************

We moved house in 2014, to a bigger house with a lovely garden and lots of storage. And, it seemed, mirrors everywhere. We had no mirrors in the last house we’d rented and I found it difficult to deal with seeing my inadequate self everywhere I looked.

It was a tough year. My nephew died at thirty-four weeks gestation, which really affected me, having had my own baby just two years beforehand. I was grateful that Ali’s birth had been so straightforward, but also felt guilty because Kaleb’s should have been too.

Ali started crèche, which meant she was sick every week with one thing or another. It was an exhausting, sleep-deprived time. John Paul and I would stay up with Ali at night, then head into work the next day, frustrated when we weren’t able to function properly. And the voices spoke louder than ever, telling me I was useless, inadequate, nothing but a waste of space. I was constantly tired to the point where I myself was sick all the time.

One day I went to the doctor’s with swollen glands. I had had a tummy bug the week before, which had wiped me out completely. I sat in her surgery, answering the routine questions.

‘I can’t go on like this,’ I said. ‘I’m sick nearly every week, and I’m constantly tired.  I’m taking my iron. What the hell is wrong with me?’

‘That’s what having a baby does to you, I’m afraid,’ the doctor smiled. ‘Unless – well, how are you feeling in yourself?’

I stiffened. ‘I feel grand, great. Why?’

‘Sometimes physical symptoms can point to an underlying emotional problem,’ she said. ‘Has anything particularly stressful happened over the last while?’

‘Well, we moved house, and my nephew died this year,’ I explained. The doctor nodded.

‘That’s probably what’s causing it,’ she said. ‘Just try and take it easy.’

As I left the surgery, I thought of how one of my college friends had recently sought help for postnatal depression and how she had bravely posted about the whole experience on Facebook. And I remember reading it and thinking oh, if only I could be so brave. So strong. So honest with others, and with myself.

***********************************************************************

By July 2014, I was exhausted. I was ringing in sick at least once a week, and producing no work whatsoever in the office. All I could do was stare mindlessly at the screen, scrolling through random Independent Living sites, taking nothing in.

And I hated myself for this lack of productivity. (You’re nothing but a waste of space)

I would come home in the evenings, and spend time with my lovely daughter, playing on the floor with her, silent tears running down my face from the pains that radiated from every fibre of my body. (You will never be good enough for her)

I wanted my house to be perfect, my daughter to be perfect. But how could that be when I wasn’t perfect? When I looked in the mirror, all that I saw was a deformed nobody, an imposter waiting to be exposed. I was a terrible wife and mother, and I was convinced that the two people I loved more than anything in the world deserved better.

‘Where do you think you’re going?’ my husband asked, his face shocked. It was half one in the morning, at the end of July and I had been in bed. Now I was awake, looking at him from the doorframe of the sitting room, fully dressed under my bathrobe. And all I saw was mess. In reality, it was a couple of dirty dishes, but it might as well have been thousands of dirty dishes; I hadn’t the energy to deal with them. If only someone had given me the memo that a couple of dishes wouldn’t signal the end of the world, but there and then, I couldn’t deal with it.

I couldn’t deal with anything.

‘I’m off,’ I screamed, jumping into my wheelchair. ‘And you can go and fuck yourself for all I care. I won’t be back. I mean it this time.’ John Paul tried to stop me but I tore out past him and headed out into the darkness. I didn’t know where to go so I wandered around aimlessly for hours, watching the cloudy sky gradually become brighter. The grey haze enveloped me as I sat beside the canal, and cried, and cried and cried.

Later that morning, I went into work, sitting mindlessly in front of my laptop. After about an hour two of my colleagues collared me.

‘You look dreadful,’ said one, surveying my dark circles. ‘Something has to give. You can’t go on like this.’

‘You need a break,’ agreed the other. ‘Before you crack up.’

My initial reaction was oh shit, I’m going to lose my job, but they were right. I couldn’t go on like that. We agreed that two months off work should help me to feel like my normal self.

Within two weeks of being off work, I felt more like myself again. which was odd, because I thought that I would hate it. I absolutely loved being home with Alison, and getting to know her better.

And then, I started writing again.

It began as a few words here and there in an empty Word document. As the weeks wore on, I began to write out the thoughts in my head, and they didn’t look as stupid as they sounded in my mind. I wrote exactly how I felt, staring at the words until I smiled. This was how I felt. And as I explained in a previous blog, I began to understand why I’d felt so shit; so many things had happened that I’d repressed, including the death of my mother and the way I’d been treated after Ali was born. I started to blog about them and it made me feel happy and peaceful in a way I hadn’t felt in years.

***********************************************************************

I didn’t write this very long preamble because I want sympathy. I wrote it so that I can say that that horrible part of my life is over. I’ve never been happier, although loving myself is going to take a bit longer. I still have bad days, but everyone has; none of us are perfect. The main reason I’ve written this, however, is because it breaks my heart to think that there might be other women out there, suffering as I did, afraid as I was to speak out and ask for help. I know it’s easy to say this now, but there is no shame in having PND. It’s an illness, a horrible, horrible illness, and nobody should have to wrestle with it alone. And if you’re reading this and can relate to any of the above,  please ask for help. I’ve heard that there are so many great counselling services out there and I’ve read and heard so many success stories. Don’t hold off – just do it. You are worth so much to so many people.

Most of all, you owe it to yourself. Because despite what those head demons are constantly trying to tell you, you’re actually pretty damn fantastic. You really are.

Enough is enough

Posted on by
4

I’ve decided to take a career break from work. Six months, to be exact. It’s something that I’d been toying with for a while but couldn’t quite bring myself to do. I work in the area of Independent Living and I’m passionate about the rights of people with disabilities. I love working with my fellow leaders. But I also love writing, and I want to have more time with my daughter, so I’m off. And it is blooming scary, I tell you. Not only because I’m not bringing in a wage, but because I’ve always worked, it’s a crucial part of my identity.

That said, I will never regret all of the time I’m enjoying with my daughter, who is now three-and-a-half and great fun to be around. She’s energetic, imaginative, cheeky, and growing up all too fast. I admit that there was a time when depression clouded my time with Ali; everything seemed hard, an effort; I didn’t think that I was enough for her. But now that I feel more like my old bubbly self again I intend to enjoy every second with her.

Since Alison was born, I’d always been afraid that I’d never be good enough for her. I was overly conscious of how I was perceived as a parent with a disability. I worried that Ali would resent me for having her, that I would become a burden on her. I’m not at all afraid of this now. Today, Ali and I walked to the shop alone together for the first time, me in the wheelchair holding her hand, her on the inside of the path. It was the best feeling in the world, because heretofore I wouldn’t have trusted myself to do this. I am finally starting to see myself through my own eyes again, not through the eyes of others.

It’s amazing how we expect so much of ourselves, but we never step back to admire what we have done. We don’t have time, we are too busy, it’s not enough. For example, I told myself that I would be an established journalist with my first novel written by the time I was thirty. I wanted to be fit and able to walk everywhere unaided so that I could keep up with Ali. Since turning thirty, I’ve been bitterly disappointed in myself that I’ve done neither of these things. It was more than disappointment, it was pure disgust, self-abhorrence. It sounds dramatic, but for months I could barely look at myself in the mirror without this disappointment washing over me.

Recently, however, something changed. And for all the things I teach my daughter on a daily basis, a month ago, she taught me the most important lesson of all.

It was evening-time. Ali and I were watching telly and I said to her, ‘I love you,’ to which she replied, ‘ I love you too mummy’. I thought for a moment. Lately, I’d been feeling grossly inadequate: I’d been in too much pain to play football, too tired to play chasing and I’d say she would have baulked at the sight of another defrosted spag-bol, cooked in bulk about a week before. ‘Ali,’ I said, ‘how would you like a new mummy?’

Ali was intrigued. ‘A new mummy? Is she nice? Who is it?’

I replied, ‘I don’t know yet. But this mummy would be super cool and play football and basketball and chasing and tie up your hair and do your buttons and go for walks. Well, what do you think?’

Ali shook her head and looked at me, placing her small hand gently on my shoulder. ‘I don’t want a new mummy. I just want you.’

Pathetic that I should need such reassurance from a three year old, but little does she know that those four words, ‘I just want you’, have changed my life so dramatically. Physically, the aches and pains seem to have faded significantly. I have more energy and a new positive outlook on life. I feel I can do anything because this little person looks up to me. I just want you.

And being so happy has made me realise that my fantastic husband is still my best friend. He has been incredibly supportive and just wants to see me happy. He is more than happy to see me tapping away on the laptop, trying to come up with literary masterpieces. He never tells me that I am crazy or deluded, though I am probably both!

From an early age, we are encouraged to compete against each other. In school, we are encouraged to study hard in order to be the best. Even under-tens partake in handwriting competitions, poetry competitions and art competitions, we have sports competitions. When we are eighteen, we sit the most competitive exam invented, the Leaving Cert, in order to get high points, to be accepted into a course so that we can pursue a challenging career. We push ourselves to be the best employees, the best friends, the best partners, the best parents, often to the detriment of our physical and emotional health.

And now, I’m saying enough, or more specifically, that I believe that I am enough. I will still give my all to everything I do, but I won’t be beating myself up if I don’t succeed. Today, at least, I feel happy and free, and if my daughter and husband still love me in spite of the self-berating and toing and froing I’ve been doing over the last few years, then I must be doing something right.

Just take it easy…!

Posted on by
Reply

I’ve been sitting here for the last half hour staring blankly at my laptop, opening website after website, reading dodgy articles on thejournal.ie. That’s not why I sat down. I sat down to finish off a journalism assignment that I started two months ago. This sounds like I’ve been dragging my heels, procrastinating this assignment. I have not. In fact, I have researched four thoroughly different articles, all half-written, because I couldn’t decide which one I wanted to write more. Don’t get me wrong: this information will undoubtedly come in handy on a later date. But this article was going to be amazing. I mean award-winning amazing. That’s not quite what I see when I read it back. I’m now afraid to open it in case I feel an uncontrollable urge to delete the whole lot (again). I’m a relentless perfectionist to the point of neuroticism: in other words, I think I am losing my sanity.

The first half of my life was dominated by people pushing me to achieve my potential. I’m not saying that this is a bad thing at all: if it wasn’t for these people (my parents, teachers, Occupational, physio and speech therapists, etc), there is no way that I would be sitting here in my own house writing this blog. Somewhere along the way, I took over, setting ridiculous standards for myself. I wrote a play in Transition Year and later helped to produce it when it was staged by my classmates, some of whom were less than thrilled when they landed male roles (it was an all-girls school). It took the best part of a month to recover from  the exhaustion and my mental health was in tatters. Did I take it easy that summer? Nah! I instead got a summer job with the Tullamore Tribune, where I worked until two weeks before fifth year started, putting aside the money for a holiday in a feckin respite centre in Roscommon (not Ibiza) a year later. I know what you’re thinking. I’m wild. Woo! Then fifth year saw me abandon all forms of human contact as I threw myself into studying for the Leaving Cert. Worried by the prospect of ending up permanently unemployed, I spent eight hours a night (4-12) studying in Fifth Year, much to the despair of my broken-hearted parents who were actually expecting me to collapse dead on the floor with exhaustion. I have  to do this, I would say to myself. I have to prove to everyone what I am capable of. I will not be defined by my disability.

Somehow, I managed to dodge a prolonged stay in a facility with padded walls and men in little white coats and I made it to Trinity College. Phew, I thought, I can relax now. And I did for the first two years, until my marks counted for something, and guess what? The  old Sarah  came back in third year, and so did that irritating voice. You got a scholarship to study here, for God’s sake. There’s no point in doing things by halves. And without the nagging of my parents and (then) fiancé (now husband) I was free to stay up  working till 2-3am on  essays, presentations and my dissertation. I lived off sugar and cereal like every other student. I would turn up for tutorials, bleary-eyed, wondering which book was being discussed today (I only read a selection of novels. Anyone on that course-and you know who you are- who read every prescribed novel/play please step forward for your gold medal). Although I let my hair down a little, I didn’t exactly have a roaring social life in college. I will admit that I did go on three foreign holidays during my college years with friends from home, but the details of those are a little hazy (though not nearly hazy enough)!!

Earlier this year, I was thirty. Like many, I looked back on the aims I  had set myself for when I reached the  big milestone: have a  Master’s degree in Journalism and be actively working in the field; maybe write a novel or a book of poetry;  do a Masters in Disability Studies. None of these were goals I ever reached, and sometimes I feel as if I’ve let myself slide into complacency. On the other hand, I have such a wonderful husband who supports everything I do and without whom I’d be lost, my daughter who makes me smile from the start of the  day to its end with her hilarious antics and a lovely place to call home. I am so lucky, and it wouldn’t hurt me to stand back and count my blessings every once in a while.

Ugh, look at this blog. Look at the dust on the mantelpiece. Look at the laundry piling up in the back hall. Maybe I’ll do some dusting. Maybe I should fold more clothes. Or maybe I’ll just … take it easy and watch some TV and deal with it all tomorrow. It will be still there tomorrow, along with my unfinished assignment.

Maybe, one day I’ll learn that everyone has their limitations.

That nobody is perfect.

Sometimes I  need to take it easy, and hopefully one day, I’ll be okay with this.

Facing my demons

Posted on by
9

It’s amazing what we as human beings are prepared to do to ourselves in order to avoid facing our feelings. It may be throwing ourselves into our work, in order to make every minute so busy with activity that we haven’t a moment to contemplate anything else, or it could be self-medication with whatever drink, drugs or substance we can lay our hands on. However, there comes a point where we can no longer do this and the only way to eradicate the demons that mercilessly control our lives is to face them and disempower them. And this is exactly what I am about to do.

Almost a year ago, my husband and I took part in a documentary ‘Somebody to Love’, which explored the challenges facing people with disabilities in finding love and forming romantic and sexual relationships. Partaking in that documentary was one of the most difficult things I have done in my life. The intimate nature of the recording and production meant that there was nowhere to hide from our feelings. We were in our own home,  our own environment, laying our private lives bare for Irish viewers to dissect.

Watching the documentary back, I can see myself trying to stifle my husband’s words, trying to stop him from saying something ‘stupid’ or ‘dangerous’. By ‘stupid’ and ‘dangerous’, I mean the truth or, more specifically, our truth. Our truth is that we felt frightened and alone. We felt that we constantly had to prove ourselves, that we  knew what we were doing, when in fact we did not have a clue. We’d never cared for a newborn before, and we were terrified, but we couldn’t let it show. In short, we were denied the right to be first time  parents: to cremate the bottle, to hold the baby upside down, to make mistakes.(By the way, I am neither condoning nor encouraging this behaviour. Please read the instruction manual that comes with your child).

One of the worst moments of my life was the day my husband and I were supposed to take Alison from the hospital, It was a Monday, and I was recovering marvellously from my section. I was feeding Alison well, and she was thriving. I was even walking a little using a walker, having had to use a wheelchair for the last three weeks of the pregnancy. However, I felt emotional and like shit; my section scar was sore, I was missing my own mother like crazy, and it felt like fluid was leaking from every bodily orifice. And this was the moment that the  head midwife, ward manager or whoever she was told me that they had ‘concerns’ about my ability to take care of my daughter. My heart broke. In that moment, it felt like Alison had died. I rang my husband and told him to take  Ali with him and leave me behind, because it was me, not him, that they had the problem with. Reading it now, it seems like the rants of a crazy person, but in that moment, it made sense. After numerous phone calls to social workers, public health nurses and Offaly CIL, we were allowed home, on the condition that a Public Health Nurse could come to our home every day and monitor our ‘progress’.

Nearly three years have passed , and now one of my best friends, who also has Cerebral Palsy, is excited about welcoming her new arrival in January. But after witnessing what  we contended with, she is starting to worry about how she will be perceived after the birth of her c child.. She will be a mother, not just an object of care, and it’s vital that she is enabled, without fear of judgement, to care for her child, It makes me furious to think that she, that we, have to think this way about the most precious event in any mother’s life, when children are being neglected by their parents every day.

and so I would urge her: If you by gross misfortune have to contend with these obstacles and attitudes, please have the courage to speak out.  This is only the second time I have done so, but I feel so much better. Only through our honesty can we truly help others and deconstruct the negative attitudes that have the power to destroy us.