Tag Archives: writing

Sunday Ramblings: Jumping Back In

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As I start writing this blog, it is 6pm on Sunday, 2 November, and it is dark outside. I hate this time of year. I honestly think I might have a touch of that SAD [Seasonal Affective Disorder], since I’ve been sluggish all weekend. Perhaps I’m just tired. It’s been two weeks since I got the pain injection into the shambles I call my hip. And while I’m not quite back walking full time yet, there have been some marked changes in my life. This afternoon, I took a painkiller for the first time in two weeks. Not because my hip was at me, but because I had a headache above my eyes, possibly from too much screentime. This afternoon, I cooked a delicious (if I say so myself!) steak dinner, complete with roasties and veg, and cleaned up afterwards. In fact, I’ve done a lot of cooking, with or without assistance, these last two weeks.

On Thursday, I went to a local disability meeting, with a group with whom I was heavily involved in prior to Covid. Everyone was shocked to see me. I think that they thought I was dead!

I’ve also managed at least half an hour on the exercise bike every day since last Sunday. I find that it’s taking me less time to cycle the same distance. And, if you’re reading this, this is the third blog I’ve written in the space of two weeks. I could get used to this level of productivity – it feels fantastic!

I need to hold onto this buzz I’m feeling, because I’m not able to go back in time. The truth is, whether I like it or not, I’ve lost so much time because of pain and exhaustion. When I finished the Disability Studies course in 2019, my plan was to do the “Train the Trainer” course, which (I think, but am open to correction on this) would enable me to give my own courses. Not only could I deliver Creative Writing Courses, but Disability Equality Training as well. Earn money, get a paycheck!

Or I’d like to do another oral history project, something like Conversations about Activism and Change. I typed out every word of those audio recordings, before editing them down. Damien Walshe and Des Kenny taught me useful lessons as I compiled and edited that collection, lessons that I’d love to apply elsewhere. Maybe I could do a collection of voices of up-and-coming activists? Without the heavy mantel of fatigue, my brain is swirling with ideas.

There are probably a number of reasons why I am reevaluating things at this moment. One is that I turned the big four-oh last year, and my original plan was to have my novel finished by then. Ironically, the first line of this, as yet, unfinished draft is “There are milestones one is meant to have reached by the time they turn forty.” This was me setting a deadline for myself, one that I’ve now missed. I would like to complete Rachel’s story, as I think many would relate to her internal (and external) struggles. She’s a hot mess, and often I want to strangle and hug her in equal measure!

Alison will turn fourteen in February. God willing, she will be going to college, an apprenticeship or a job when she’s finished the Leaving Cert, and as a stay-at-home mum, I suddenly find myself at a loose end. Where once I filled my days playing Lego, setting up Sylvanian houses or doing elaborate art projects, I now find all the time I once spent one-to-one with her spreading out in front of me like an overflowing lake. Don’t get me wrong – I’m still needed. For example, I was awake until one this morning applying tea-stains to her costume for the upcoming Addams Family Musical, as she is playing an ancestor. Apart from these moments, she’d much rather hang out with friends than her mum, which is a normal part of her push for independence. But I don’t really know what to do with myself.

I’m still available for proofreading work, but anecdotal evidence suggests that my opportunities in this area are fast diminishing in favour of AI. This is part of the reason why I didn’t feel motivated to complete that editing course that I started two years ago. If I think too deeply about it all, I start panicking. There’s nothing quite as sobering as scrolling through jobs.ie, and seeing that I am qualified for nothing relevant, nor have I the skills for local jobs. Waitressing, working on the shop floor, even factory work all seem beyond my realm of possibility. Of course, I apply anyway, because you never know. Dear reader, I don’t know if you’ve ever been to a job club. I have, and it was one of the most humiliating experiences of my life. I did this online career quiz and the top result was “Interpreter”. When the facilitator asked why I was laughing, I said “I can’t be an interpreter. I need one!” Awkwardness rippled around the room as my fellow jobseekers couldn’t decipher whether I was serious or messing.

So that’s where I am now, wondering what I should do next. All offers and suggestions welcome. In the meantime, I’ll be attacking my novel yet again while drinking the tears I’ve sobbed because of it.

Tuesday Thoughts: Weathering the Storm

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To my followers in Ireland and the UK, I hope that things have settled back to normality after the devastation of Storm Eowyn. Apparently, it was one of the worst storms that we’ve seen in our lifetime, and it’s predicted that these so-called “weather events” will become more prevalent in the future. As an island country, there’s only so much we can do. What are those who are living beside those idyllic sea views supposed to do, surround themselves in sandbags and hope for the best?

I must be honest: the only other storm I ever took seriously was Storm Ophelia in 2017. Others didn’t take it quite as seriously, alas; I remember looking outside to see a couple walking past the house, as if it were merely a brisk winter’s morning. Moments later, a leaning tree, firmly rooted in the patch of grass outside our front gate,  blew to the ground, the roots exposed, reminiscent of the uncovered spokes of a bicycle. All things considered, we fared well during that storm; no-one got hurt, our property (including the rabbit hutches outside) remained intact, and we never lost power. Surely if we could survive Ophelia, we could survive anything, right?

As the weather warnings intensified, I contacted my friend Orla who came the night before and helped us to heap everything into the shed. We charged up the portable chargers “just in case”, and I prepared food for the next day. Being honest, part of me thought the whole thing was a pointless exercise. When I went to bed that night, the wind was gathering pace, banging around the windows and walls. Still, I slept for an hour or two, but when I woke, the room was clothed in darkness. Even though I’m a forty-year-old woman, I feel no shame in admitting that I’m afraid of the dark. I reached for my phone and noticed that the battery icon was white, not green, which meant that it was no longer charging. Shit. We’ve lost power.

There was nothing I could do at five o’clock in the morning, so I waited until the sun rose to get out of bed. Everything I would normally do in the morning was now scuppered by this lack of electricity. I’ll just make a coffee…no, wait… I’ll hoover… oh, I can’t…. and so on. The dogs were whinging at me, clearly unimpressed that they weren’t getting their morning walk. However, I think the situation became clear whenever I opened the back door and the two of them nearly blew away on their quest for their morning constitutional! After that, they were happy to bunk down in their crate and wait for the chaos to pass. And it occurred to me that was all I could do, too.

Orla texted me, concerned at our lack of power. “Is there anything I can do?” she asked, and unfortunately at that stage, there wasn’t. But we were extremely lucky: at 2pm, without any fanfare, the power returned. We all hastily showered, stuck our phones onto chargers and prepped food in case we lost it again. Alas, I know that not everyone was as lucky, and we offered assistance to anyone we could think of who might have needed it. Four friends stayed with us until their power came back, and it was an honour to help. After all, it’s a horrible feeling to be stuck in the dark, feeling like there is no-one to turn to.

Very few of us, except the cold-hearted (and I don’t know anyone who falls into that category), would refuse help to anyone who needed it. The trouble is, we don’t always know, or can’t always tell, when someone needs help. And afterwards, we always feel terrible that someone has endured suffering alone, and we admonish them: “Why didn’t you tell me? You know I would’ve been there for you.” Of course, logically, we know this – but sometimes, when you are caught in the eye of your own personal storm, it’s difficult to explain the devastating impact of the damaging gusts raging around your mind. 

You can’t catch a breath. You can’t even think straight because your brain has automatically switched to survival mode. All you can do is grab onto something and hope you don’t fly away. You learn to become numb, because you can’t handle the guilt that goes hand-in-hand with feeling your emotions. For me, I don’t like letting people down. No feels like an impossible sentence to utter. So, rather than setting boundaries, I hide and pull away. 

And boy, did I hide. I left a beloved writer’s group (but rejoined today – hurrah!). I didn’t make contact with anyone, choosing instead to watch reruns on Netflix (up until last year, Only Fools and Horses was the only television programme I watched, or binged). Each day was a long struggle, from the time I woke to the time my head caressed the pillow again. And it didn’t have to be. I could have called someone, asked to be rescued from the storm. But I was ashamed. I was haggard and browbeaten, my confidence having flown away. Eventually, it dawned on me that sitting around waiting for the confidence to return was not going to make it happen.

I’m still in the baby steps phase, but I only made two New Year’s Resolution this year: one is to write as much as possible, even if I think it’s shit, and the other is to do everything in my control to ensure that, in low moods or dark days, I have some kind of emotional powerbank charged at all times, ready to use in emergency situations. Last year was tough. I lost four friends within a twelve-month period whom I think about every day, and the fact that human life is fragile has not escaped me. Of course, toxic positivity is just as dangerous as negativity, but I need to ringfence my emotional health, protect it from the storms of everyday life.

That said, in writing this I do not intend to trivialise the damage caused by Storm Eowyn two weeks ago. To those of you still waiting for power or water to return, facing repairs to your properties or cars, or have lost food due to lack of electricity, I’m thinking of you. The government needs to be prepared. We can – must — do better in the future. We must be more prepared for storms yet to come.

Tuesday Thoughts: A I A I NO!!

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I think my eyes have gone square from staring at the screen all day. After a lazy Christmas, I started back to work on an editing job I’m doing for one of my clients. Editing is a slow job, and frankly, nowhere as exciting as writing. It’s handy, though, insofar as I can fit it around other things, like pretending to write a novel and housework. I like to take my time, reading sentences aloud to make sure that they sound right, double checking grammar and punctuation, and sometimes I even learn something new if I need to verify something in a dictionary or thesaurus.

Working freelance means that I can work when I please. It suits me, especially now that chronic pain has made its way into my life. However, the reality may be that my editing days are numbered, thanks to AI. Who’s going to pay me to do something that an algorithm could do for half the price, if not for free?

It will come as no surprise to you, dear reader, that I consider the written word to be important. I studied English literature for four years, reading masterpieces that came from the quills of Chaucer, Shakespeare, Milton, progressing to Austen, Bronte and Dickens, then edging ever closer to the modern day with Elizabeth Bowen, George Orwell, Helen Fielding. I learned that the longer nineteenth century novels were serialised, due to the cost of printing. As we moved into the mid-twentieth century, novels became shorter (three to four hundred pages). Becoming a published author was a feat that was increasingly slipping out of reach.

However, thanks to the invention and widespread provision of the internet, it seems that any auld gobshite can write and publish whatever, whenever they like. It doesn’t even have to be “good” or to a publishable standard whatsoever (and many instalments of this blog should be treated as cases-in-point). All considered, it’s probably the worst time to consider a career in writing. The market is saturated. We’re told that publishers have gigantic piles of unread masterpieces in their offices, loitering around the shredder. Writers really have to love what we do, otherwise many of us wouldn’t even get up out of bed in the morning.

And if that wasn’t enough, we’re now competing with AI as well. The irony shouldn’t escape us that we humans were the ones to invent and hone AI, and now we may well be surrendering our jobs to them. AI has been around for some time; it’s not a new phenomenon. When I was studying in Maynooth in 2019, some of my classmates joked that they were going to put their essay ideas into some sort of essay generator and see what came out. (They didn’t, thankfully!). Now, AI seems to be able to do it all – content writing, editing, even fiction writing. Which sort of makes sense, right? After all, there are basic formulae for certain types and genres of writing. In this respect, writing is like maths.

But writing is not like maths. The truth is, that even when a writer follows a pattern, for example, start, middle and end, he/she squeezes a little bit (or a lot) of his/her soul into the work. A little personality, a deeply hidden fear, a scar that never quite healed properly. For many, myself included, writing can feel like flashing at the world behind the safety of a screen. Often, it’s a cry for help, understanding and solidarity. Say what you like, but how can a preprogrammed algorithm have the same effect?

Think back to when you first started reading. I know I loved Enid Blyton’s “jolly goods” and her descriptions of the Famous Five’s midnight feast; I related to Roald Dahl’s Matilda at a time when I, too, felt misunderstood by the world around me. Dahl himself had experienced a troubled, violent childhood at the hands of his teachers, and no doubt he found writing to be therapeutic. Don’t dare tell me that a reader could connect with an algorithm in the same way.

And yet, many writers like me are fearful of the future. As it stands, many writers are seen as charlatans, daydreamers who sit around all day, hoping for good fortune to fall into our laps (or keyboards!) The only thing we can do is keep writing.

We all deserve the privilege of telling our own stories. And let me tell you, however crappy or unpolished my words may be, I’m certainly not in a hurry to give away that privilege.

Tuesday Thoughts: Last Day Promise

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If you are reading this, congratulations! You’ve made it to the end of another year! It might not seem like a huge achievement, but believe me, it is. This year alone, I have lost at least four wonderful friends and activists – Selina, Peter, Leigh and Emmet. One loss can be difficult to digest, but losing four people has been hard going, in fairness. At first, when Selina passed, I felt trapped in a state of disbelief and paralysis. How could someone be here one day, and gone the next? II rattled me into a haze, but the passing of Leigh shook me right out again.

Life is short. Shorter than we think. My little girl, with whom I once spent the days playing Sylvanian Families and doing arts and crafts, will officially be a teenager in six short weeks’ time. I officially am in the fifth decade of my life. It may seem cliche, but there’s something about turning forty that makes you stop and reevaluate a number of things. What’s important, and what’s just not worth the worry. I need to remember that worry is wasted energy, and that the need to feel in control is a form of anxiety (according to the motivational speaker, Mel Robbins). Covid should have taught us that we can’t control the external world, all we can control is our reaction to it.

You may have noticed that I’ve started blogging a lot more. The truth is, for every blog you read on this site, there are usually another two attempts in a Word Document somewhere, which never see the light of day because I don’t think it’s good enough. And while I think that a writer should indeed practice their craft in private, labouring away at the little parts and tweaking them to their liking, more experienced writers have taught me that if it’s perfection that I’m striving towards, it’s unlikely that I’ll ever publish anything. With this in mind, I hope to spend much of 2025 learning how to be comfortable with rejection. This means starting to send pieces into actual publications instead of hiding them away on my laptop. Even as I type this, the very thought terrifies me. I tell myself that I’m not *that* kind of writer, the type that deserves any kind of validation. If I keep going as I am, I will always be safe, but I will never make progress. (This realisation was not made on its own; it’s the advice of many established writers: Stephen Fry, Vanessa Fox-O’Loughlin, Dave Butler to name a few.)

I know that I should be doing a year plan , but since I’m only still recovering from a period of mental ill-health, I think the best approach right now is a daily or weekly one. My resolution is to be kinder on myself, not harder, as the hard approach fills me with shame and doesn’t really get me anywhere. I think 300 words a day is a reasonable aim, and anything after that is a bonus. I would also love to drum up more editing work from somewhere. As crazy as it sounds, the reason I enjoy it is because it’s a completely different approach to writing, and editing other people’s work while trying to retain their individuality has made me a better writer. It’s also led me to edit my own work more, and to produce tighter pieces (well, not today – this is a tad waffly, isn’t it?)

And I’d love to finally finish a full first draft of my novel. I still believe that Rachel’s story is worth telling. It’s the story of a woman who is struggling, her identity stretched between being some sort of supercrip and being someone in dire need of help. Someone who, like all of us, needs to stop listening to that negative inner voice and to confront her demons. It all sounds very serious, but actually she’s a feisty character and those who have met her seem to like her. Hopefully you all will get to meet her too, in the near future!

Here’s to 2025! Looking forward to seeing you there x

Sunday Reflection: In Preparation for 2025

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In almost every way, I’m afraid 2024 has been a bit of a letdown. Like a lot of writers, I sat down a few days ago to do an evaluation of my year and disappointingly, in terms of productivity, this has been the year that I’ve done the least writing since I started writing ten years ago. I feel like I let myself down – a whole twelve months without much to show for it. My year began with a trip to the doctor’s office in mid-January, crippled with the most paralysing bout of depression I have ever experienced. She asked me some uncomfortable questions, which made me realise how bad things had gotten, and filled me with indescribable shame. 

I withdrew from everything. I stopped texting friends. Stopped trying to achieve any hint of literary genius. My editing course, which I started a year ago, remains only halfway completed in a cloud somewhere on the net, which is so unlike me – I’ve always flown through my writing related courses. And poor Rachel has been wantonly abandoned in favour of mindless Netflix binges (namely, Taskmaster binges), which is definitely out of character for me – I don’t watch telly really; I didn’t even watch much of it when we were in lockdown, opting instead to try writing flash pieces and to work on the compilation of Conversations about Activism and Change. I’ve lost my confidence, not that I was abundant in it to begin with. 

While I became overly comfortable in my cocoon of fog and self-hatred, a whole year of promise and opportunity passed by. Listen, you must admit that it’s not difficult to become disheartened by the state of the world around us.  I would strongly advise against binge-watching Reeling in the Years for the years 2010-2019, especially if you still have any hope for the future of humanity. Plus, the last few Covid-riddled years have not been easy on anyone, and I’m sure I’m not alone in becoming comfortable in my own company. It was too much time to think, to reflect on all the wrong turns I took, little bothreens that led to dead ends, the many mistakes I’ve made along the way.  

Staying in your head for too long isn’t good for anyone, especially since it’s now universally acknowledged that our toughest critics are the people who look back at us in the mirror. Also, through listening to various podcasts, Mel Robbins being one of my favourites, I’ve come to recognise that my own thoughts about myself are not necessarily true, and that we are hardwired to be risk-averse, because our brains are designed to protect us, a thought regularly echoed by one of my writing mentors, Maria McHale. This way of living, apparently, is not conducive to the creation of art. Indulging in art is risky, because it necessitates opening your soul and using the most personal of experiences to create something that other humans can relate to. 

I cannot waste another year frozen in time, watching any prospect of a writing career sliding down the toilet, and so I am renewing my commitment to keep writing, no matter how demotivated I feel, or how shit I think my words are. Apparently, not everything a writer produces will be dripping with brilliance – who knew? When I started out ten years ago, I thought that churning out novels would be effortless, once I got the hang of it, of course. Enid Blyton could bash out two “jolly good” novels a year, so surely I, too, was capable of it too? Turns out, it’s not that straightforward. Enid Blyton didn’t have to wrestle with the distractions of the Internet – possibly the worst enemy of the would-be prolific writer.  

Also, just because teenagers are more physically independent doesn’t mean that you are redundant, whether you are the taxi-driver or the clothes-washer. And my daughter has no interest in divulging anything that’s going on in her life, until it’s nigh on ten o’clock at night and my eyes are getting heavy – then absolutely everything comes out (and I must admit, I secretly love it!) Being a parent will always come first, but right now I’m relearning what my role is. On one hand, I have more time to write (and more time means less excuses –  theoretically I should be able to blog every day); on the other hand, I spend my time ensuring that all sports gear is washed and dried ready for impromptu matches, and keeping an eye on those cursed WhatsApp group chats. I have so much respect for people with more than one kid, who need to be in two places at once. 

I wanted to post this, firstly as a promise to myself to get more words on the page, regardless of how lousy I think they are, and secondly, as an attempt at solidarity to anyone who’s coming to the end of an equally unproductive year, especially if you, too, have had your plans scuppered by mental ill-health. I see you, and I want you to know that we are worth more than our productivity, that achievement is relative, and even making tiny steps beats doing nothing at all.  

Finally, a warm thank you to those who refused to leave my side this year – you know who you are – especially my rocks,  my husband and daughter. I am so lucky and I love you all x 

Tiny Thursday Thought: Elves not quite Shelved

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It is the 5th of December, and Archie, Sparkles and Ellie, Alison’s elves, have not arrived yet, the lazy sods. Gang, I have searched all the usual places, but I cannot put my hand on the troublesome trio. But I thought, it’s not a huge deal. After all, Alison is twelve now. She’s nearing the end of her first term in secondary school. She’s gone to two teenage discos, has experienced her first crush. Too old for elves, right? She caught me putting them in the blender a few years ago, with Lotso sitting on top, so the game was up; she knows it’s me. But as I write this very piece, I’ve just answered the door to a package ordered in a hurry, containing replacement elves. Honestly, the things we parents do for our (preteen) kids!

Just last night, when I was having the usual bedtime chats, Alison surprised me by asking whether the elves were coming back. Because she’s old enough, I told her the truth: that the original ones are missing, and that I ordered new ones to come and stay. To my surprise, she handed me her two foot ornamental gonk, winked at me, and said, “I wonder if this lad will turn magical and do something when we’re asleep tonight.” This morning, she found him sitting up in the bath, a handtowel wrapped around his waist. Surprise, surprise: I’m not too inventive at nearly eleven at night. Now, she didn’t exactly squeal in excitement, but there was definitely a hint of a smile on her face. Even though she’s now in secondary school, with a schoolbag heavier than an army tank, she’s still just my little girl looking for magic.

Like many parents of my generation, I got sucked into the Elf on the Shelf thing against my will. My friend introduced Archie to our home (if you’re reading this, thanks a bunch Kate!) when Alison was four. She’d already been introduced to an elf called Archie in playschool, a sort of mini-police officer dressed in red, that reported back to Santa on a daily basis. To be honest, the whole thing freaked me out a bit, not to mention the toy’s creepy little face. The whole idea behind it is to report behaviour to Santa. Oh, and apparently if you touch it, the elf loses its magic.

Neither of these things I have ever said to Alison. It was something she learned at playschool, and explained to me as I looked in wonder, pretending not to know where Archie had come from. Controversially, I decided that if Archie was going to be a fixture in our lives for at least the proceeding eight years, then I didn’t want him to be a tattle-tale to Santa. Alison was an only child, and she deserved to have an ally. Mum and Dad were always on her back; she didn’t need a creepy little doll watching her every move as well. She needed a confidant, someone she could have a laugh with.

As the years have flown by, the elves have been on so many adventures, from wallet robberies, to playing concerts to packed-out audiences and of course, Alison’s favourite – the winter wonderland, which is all our Christmas ornaments laid out on the coffee table and dusted with flour (always an absolute nightmare to clean up). I’m a writer, and this is one of the few times it’s paid off: Archie, Sparkles and Ellie write individual notes to Alison; each note has its own distinctive voice, and as she got older, Alison started to write back. I would argue that there is no greater writing exercise than trying to get into the quirky minds of imaginary elves, at eleven at night. And if she’d written to the fairies too, well, let’s say they were some of the few times I’d wished I was a coffee lover. I’m simultaneously proud and ashamed of the BS I’ve churned out over the years. Then, of course, you have to keep track of said BS, because although you can’t remember whether you said that Snowflake’s hair was red or blonde, Alison remembers. (Yet I can’t include these notes in a professional writing portfolio. The injustice!)

By the time Alison was nine or ten, I was starting to run out of ideas for the elves. Think about it – six years times twenty-five days meant 125 different elf antics, all in the confines of my house! Two years ago, in desperation, I turned to Facebook and followed the Elf Idea pages, hoping for new antics. Some of the ideas are so elaborate I wonder if these people have jobs. Nonetheless, I’m all for making Christmas magic – to a point, of course.

This morning, however, as I was scrolling through Facebook instead of doing my morning pages (an exercise, a bit like this blog, where you write pure crap in the hope of eventually hitting gold), I came across a post from a parent who wanted the elf to punish the child for not doing well in a school test! If that wasn’t fecked up enough, other parents offered suggestions! Now, of course on bad days, I’ve pointed out to Alison that Archie, Sparkles and Ellie are reporting back to Santa, but my husband and I decided that we were the parents, *we* needed to take sole responsibility for disciplining Ali if and when necessary. I did threaten her once or twice, but on those rare occasions the elves have written saying that although Alison was naughty, they knew that she was a good child, a human child who makes mistakes. A lesson that, over the years, the elves have been more successful at teaching her than we ever could have been. A reminder to a little girl who is sometimes too hard on herself, that she, too, can make mistakes and still be loved.

This may be a bit controversial, but the idea of a wiry doll dressed in red holding a kid to account for their behaviour doesn’t sit well with me. Santa is one thing, but he’s not a physical presence in your house, and isn’t that the beauty of it? Can any of us, child or adult, be good and “well-behaved” every hour of the day? I think not. So why has expecting this behaviour from children, especially at a time of the year when they’re exhausted from routines and early mornings, not to mention friendships and the chaos of afterschool sports and matches, become the norm?

Talking to a disappointed Alison last night made us both so emotional. Because the truth is she needs those elves. It’s a form of communication between us about things that might be difficult to express. A reminder that we all need a bit of silliness in our lives, that we deserve to be loved in our best and worst times. And if that’s what those silly red dolls represent to my daughter, then I’d better go and google enough antics for the next twenty years, obviously while staying away from those stupid Facebook groups.

My little girl might not be so little anymore, but she’s reminded me that the little things are still the big things. And I’m so excited to see the look on her face when she comes home today.

Thursday Thoughts: All in My Head

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(written 21 October 2024)

I’m sitting at my computer this morning, while my two dogs snore loudly on their bed beneath my black desk, the one I got last year in JYSK and assembled with the help of then eleven year old Alison. This is what every working day should look like for a writer: Microsoft Word open on the screen, the cursor blinking impatiently as it waits for you to input the masterpiece you are weaving in your head. It’s been almost ten years since I decided to throw any prospect of future employability away and instead pursue some vague ambition to become a writer. 

Most days, I enjoy it. Above everything else, as I have mentioned several times before, writing has often been the only thing keeping my fragile mental health from shattering into bits. If you, dear reader, have any perception of what this feels like, then you can also imagine how frightening it is when you feel yourself being pulled down that dark road of nothingness, and the thing that you normally rely on to pull you out – a string of words – refuses to materialise. Not only were the words not appearing, my will to sit in front of a screen while I bubbled with frustration was also fading quickly.

I’ve been wrestling with mental health issues for years, along with approximately twenty-five percent of the population. Over the last few months, I’ve recognised a pattern which sets the darkness in motion. First of all, I become tired, just like any ordinary person becomes tired. When I’m tired – and I’d wager I’m not alone in this – even the simplest things become overwhelming. There’s an extra load of laundry I hadn’t planned on tackling today. Alison’s bedroom may look clean, but if I open the wardrobe and drawers, I’ll have to deal with the crap in there. None of these things are life and death, as long as you’re in the right state of mind. 

As for writing a novel, well. You might as well say go and climb Everest, because neither seem possible when the black dog comes and licks your hand.

I know in part that the chronic pain I now live with contributed to this round of misery. It’s been four years, and yet I’m struggling to accept that what my mind wants to do and what my decripit body is able for is not in alignment. Lowering my standards isn’t in my lexicon, and that creates problems daily. Often, I go to bed frustrated because that load of laundry lies unfolded in the dryer, or because there’s toothpaste cementing on the side of the washbasin. I am a writer, but I’m also a stay-at-home mum and wife. If my husband can manage his job and bring in a wage, then why can’t I manage mine?

Then, of course, it occurred to me that the above narrative is not helping my mental state, and that the only way out is to be kind to myself. This is in direct opposition to everything I’ve trained myself to do over the years. Tough times? Push through it. Want results? Work harder. After a spell, the messages become nastier. What made you think you could write a book? What’s the point in applying for work, when your last full-time job was ten years ago? Imagine this on repeat all day, like a soundtrack on Spotify; sometimes the order shuffles a bit, but the core messages are invariably the same:  You are going nowhere. You have wasted your life.

Before the summer, while packing to go to Australia for a month, I just said enough. I had just turned forty. I’ve no novel, no marvellous collection of short stories, and not enough work coming in to justify my role as proofreader. But why do I rely on these titles to give me my sense of self-worth? I came in here into my office and took out Conversations about Activism and Change, which may be the closest to a published book I’ll ever achieve. And while it isn’t perfect, I now leave it on my desk as a reminder that I am capable of conceiving and completing a project. I can handle the monotony of transcripts and editing, and editing, and more editing. Now, I can be proud that the book has made a contribution to Irish disability history. A book that came from a throwaway comment to a friend about yearning to record the people’s history of the movement.

At the moment, it often feels as though I’m watching my own life from the outside, like a boring silent film, but I have started to chisel away at the glass and hopefully soon it will shatter completely. I’m impatient by nature, but now I’m coming to accept that I can’t just bounce back into the life that I drifted away from this time last year and expect to pick up from where I left off. That said, my friends have all been incredibly patient and understanding and have helped me in rejoining society, physically and mentally. I also know I need to be kind to myself. Losing so many friends in the space of a few months has hit hard, and I need to readjust to loving them in a different way to what I might like. But I am getting there, and it seems that writing might be the key.to unlocking my life, after all.

The Important Conversations – Tuesday Thoughts 4

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(Published Sunday 25 June 2023 due to holidays)

Let me take you back to January 2008. I’m working with the Offaly Centre for Independent Living, my first job after graduating from Trinity with an English Degree. I’m twenty-three, and I think I’m the cat’s pyjamas. I’ve landed a job here on the FAS Scheme with little to no experience. Trouble is, I don’t quite know what my role is. I want to add something, but I’m not sure what I’m adding to.

I google Independent Living and read definitions that at one stage, I could recite verbatim. I’m starting to think that my new job isn’t all that exciting. Then I come across the story of Ed Roberts, and suddenly I’m captivated. It’s the story of a very ordinary boy who, in his early teens, contracted polio and was left almost completely paradise. He’d written himself off, fervently wishing to die until he was told that if it was truly his wish, then so be it. Suddenly, Ed realised that it was freedom of choice he was craving and that he wanted to live.

I’m hooked. I need to know more. I come across another name, Judy Heumann, and my mouth falls open as I learn that she and Ed were at the centre of the establishment of an entire human rights movement. There’s more information about them both – interviews, short films – and I realise, as I waste away another day in front of my laptop, that it’s these stories that are making me more curious about Independent Living. These real, personal stories.

I gain permission from my manager, the late Michael Nestor, to capture these stories. But I’m young and inexperienced, and my overall efforts are a bit crappy. I don’t prepare the questions properly, I don’t bother to prod people or encourage them to talk. I’m going in with my preconceived ideas about what people are going to say. As a result, the finished product is a flop, and there’s no uniformity in the collection. No common theme emerges. And I convince myself that maybe I’m not as interested in Independent Living as I once believed.

Still, the idea of capturing the Independent Living Movement in some tangible way never strayed far from my thoughts. It’s said that one reason for writing a book is because as a writer, you wish to discover something, rather than to impart wisdom that you already know. In 2014, I decide that I wanted to write full-time, a decision that frightens me to this very day. I’ve always loved reading stories, and I want to capture some of my own. I start to move away from disability activism. Alas, something terrible would happen and whether I like it or not, I’m about to be roped back in.

On the 13 October 2016, RTE announces that the father of the Irish Independent Living Movement, Martin Naughton, has passed away at the age of 62. It can’t be true. Surely Martin is invincible? I genuinely believe that the bottom has just fallen out of the disability movement. Who would take over? Little do I realise that nobody needed to “take over”, that for years, several other disability activists had been coming together to bring about much-needed social change. I know that there had been a historical protest in September 2012, rallying against the eradication of Personal Assistance for disabled people in Ireland, but who had been involved? What had been sacrificed? Were they scared? Did they ever just get tired of the whole bloody racket and vowed to give up? For some reason, I need answers to these questions. I need to know that, if I’m going to join a disability movement, that it’s not going to be a waste of my time and energy. I need to know that this movement truly belongs to disabled people.

I’m being arrogant again. I know nothing. A week after Martin’s passing, a group of us are brought together to discuss a commemorative event. I’ve heard of many of these people, including Ann Marie Flanagan and Shelly Gaynor, but I’ve never met them before. I was following them in a quest to create a space to talk openly about rights and self-determination, but I was joining the motorway from a different exit. I wanted to know more. I asked permission to set up a blog to gather these stories. But it still wasn’t enough for me.

Another reason for writing a book is to create something that you’d want to read yourself. I’d always wanted to read about the history of the Independent Living Movement in Ireland, not just about dates, but I want to capture the human passion behind it. How do you nurture that inner self-belief that you truly belong in the world? Working on the commemorative event, I realise that camaraderie is a huge part of it. Activism isn’t just about marches and policies; it’s those little chats in the pub afterwards where you expose your vulnerabilities to other people. That’s how you learn to trust in each other, and come together for a collective cause. As I hear other people talking about Martin Naughton, what struck me was how many people remark “I didn’t know that I could do x, y or z, but Martin believed I could, and so I did it.” That, to me, is powerful, and I wondered how I could collect these stories and inform others about the power of the collective.

One thing I learned when I worked in the area of independent living is that people don’t always relate to academic definitions or legal jargon. They connect to each other, something that became increasingly obvious in the early days of the COVID pandemic. Independent Living Movement Ireland committed to creating online spaces where seasoned and emerging activists alike could share experiences with each other. In April 2020, with no hope or expectation whatsoever, I approach Des Kenny, Chair of Independent Living Movement Ireland (ILMI), with an idea that we could capture these stories. His support and encouragement led me to approach Damien Walshe, CEO of ILMI, with a rough proposal. To my surprise, he agreed that ILMI and the Independent Living Movement should document these histories, and would I like to have the honour of doing it?

I was thrilled. – But shouldn’t you call in a professional? I asked.

-You are a professional, I was told. You’re a disabled writer with lived experience. Now put that useless doubt to one side and get on with it. That wasn’t what I was told, of course. Damien and Des are kind, diplomatic gentlemen. What they actually said was: “We wouldn’t let you near it if we thought you weren’t up for the job.”

And so, we invited a number of activists to recount their stories to a live Zoom audience on Wednesday nights during the summer of 2020. Ellis Palmer, talented BBC journalist, suggested that the sessions should be made into podcasts, and made available on the ILMI website. 

I admit, I didn’t really give much thought about what I’d signed up for. I’d done transcription work before, but I was nervous about doing this. I wanted to capture the unique voices of those who were to be included, so the transcriptions were word-for-word, then edited so that I wasn’t tempted to include my own slant on their stories. The actual progress is laborious and time-consuming, but completely worth it. It’s the only way to capture the authenticity of these pieces, and for these activists to have ownership over their own words.

I cannot stress enough that the final product, Conversations about Activism and Change: Thirty Years of Independent Living Movement Ireland and Disability Rights is not a definitive history of the disability movement, but rather my first attempt in capturing part of it. If I had my way, I would still be interviewing disabled activists and transcribing their stories, but alas, I’m only human, and we needed to agree an end goal. These stories are intensely personal. Details of personal and political struggles can be sad to read. What shines through the entire collection is the recognition on the part of all the storytellers that they were not alone. Once they wrestled with the internalised oppression, which is a byproduct of an over-medicalised childhood, they learned how, through working together, to recognise and tackle societal and attitudinal barriers. Some stories include subtle nods to fallen comrades who influenced them as activists. There’s a consensus that although much has been achieved, we still need to keep fighting to be recognised as citizens with rights as opposed to objects of care.

Conversations about Activism and Change is the book I yearned to read when I started working in the area of Independent Living, and I am so relieved to know that younger activists coming up behind me will have some sort of blueprint for campaigning for equal rights in the future. It is my dream that the language of equality and human rights will override the long-seated discourse of pity, charity and helplessness that is so deeply intertwined with disability in Irish culture. And the only way this will ever happen is if we continue to use our own voices to create those important counter-narratives, to have the courage and conviction to speak for ourselves and own our own histories. 

Conversations about Activism and Change: Independent Living Movement Ireland and Thirty Years of Disability Rights

Available on Amazon as paperback and for Kindle:

Hero or Villain?

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So, I just thought I would give you all a little update into how the writing is going. Well, at this exact moment in time I, like so many of you, am fit to melt into a puddle, which isn’t helping. Before this week, however, I was plodding along until once again, I found myself disappearing into a cul-de-sac. Interestingly, I know in my head where this is going – finally! – but it’s not translating to paper as well as I’d like. This is a common predicament for writers, not unique to me. After hacking away for a while, and adding words purely to beef up the word count, I decided to take a break. I gave myself permission to step away, justifying my decision with advice from writer Sam Blake (The lovely Vanessa Fox O’Loughlin) that sometimes you need to allow your subconscious the space to put elements of the story together. I’ve spent the last week or so doing just that.

A number of things have rubbed me since reading in Cork nearly a month ago. I began thinking about the advice my brilliant mentor David Butler gave me during our last session. “You’re really being too hard on Rachel,” he said, which annoyed me a bit, because I think Rachel deserves it. My protagonist can be lazy, selfish and quite frankly, a bit manipulative. She uses events of the past to justify her shitty behaviour towards those around her.  Some days she annoys me so much that I want to shake her. Why doesn’t she just try a bit harder?

The funny thing is, David is absolutely right, of course. Everyone in my writing group loves Rachel and is rooting for her to overcome her demons. They think she’s feisty and assertive in all the right ways, and they seem to look forward to the next instalment, which is flattering. Rachel even got a few laughs at the West Cork Literary Festival, which was such a good feeling. My daughter didn’t go to the reading, but she read the extract in the back of the car afterwards. Her eagle-eye spotted every detail; she is an avid reader who I’m sure can memorise many of Jacqueline Wilson’s or David Walliams’ books. After she finished, my daughter asked me “Mammy, why does everyone hate Rachel?”

“Did you not hear what her boss said to her? She’s been missing appointments, coming in late and hungover. She’s not a reliable employee.”

“Yes, but she seems to care about her clients. I know she’s not perfect, but I can see where she is coming from too. People need to back off her.”

My eyes narrowed. “Hmmm. Have you been talking to David?”

After taking a break for a week, I went back and read over the story again. I could see what David and Alison were saying; I am quite hard on Rachel, and she deserves some happiness. Because Rachel and I are similar in many ways (the Cerebral Palsy, the struggle to fit in at work, and hating being called “inspirational”), I’ve been trying to detach myself from her a bit. I did a one-day course with Michéle Forbes in April on creating characters, and now I understand why all my characters act the way they do. Including my antagonist, Sister Anthony.

For years, I’ve said that I base Sister Anthony not on a person but rather an attitude that I as a disabled person have encountered all my life. That voice that tells us as disabled people that we are less than (I’ve written about internalised oppression before), that in order to be accepted, we need to change and conform. These ingrained beliefs – personified in my story through Sister Anthony – can be difficult to challenge unless we question them, where they come from, and how damaging it can be to believe them.

I know you probably don’t know what I’m on about, so let me explain. (Oh, please reader, be kind; this is so hard to write and admit to). The reality of aging with impairment is something that is seldom talked about. I was lucky to have availed of services throughout my childhood – physio-, speech- and occupational therapy. However, in Ireland, once you turn eighteen, access to these services becomes restricted, if you’re lucky enough to have access in the first place. I’ve always been lucky in accessing services, but only because I’ve pushed for them.

In recent years, I’ve experienced aches and pains beyond anything I ever had in my childhood or teenage years. I still do my physio and exercise, but my body is starting to fight back against some of the things that I used to regard as normal. For example, I used to hoover and mop on my knees, because that way I didn’t need to worry about balance and coordination. I love ironing – my mother taught me the importance of perfectly ironed clothes – but now an ironing session might warrant an hour’s rest afterwards. I’m not giving up. I’ve always been independent and that’s not going to change. But I have to admit that sometimes I worry that this decision will have unsavoury consequences.

And on Friday, I had a very upsetting moment of realisation. Upsetting to the point where I cried – a lot. Yes, I am like Rachel – stubborn, imperfect, obstinate and determined. But I have also become my own Sister Anthony. And Anthony is not a pleasant person. She’s pushy, and often extremely cruel. Her expectations of Rachel are unrealistic and the by-product of living in an ableist society, one where the medical model dictates that self-improvement and conformity are key to being accepted as an equal. 

I’m glad I recognise this in myself, because it means that I can heal. I need to give myself, and Rachel, a bit of a break. Heaven knows we’ve both put up with enough to last us a lifetime, and for the first time since I started working on this story seven years ago, I’m starting to think that we both deserve a happy ending. And for Rachel, this will just be a matter of writing a couple of thousand words. Mine will only come with an acceptance of my limitations, and this will take a lot more work. But I will get there, and hopefully finish this godforsaken novel in the process.

(Not today, though. It’s far too hot!)

The Big Imposter

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Forgive me reader, for I have sinned: it has now been four months since my last blog. I was browsing through it today and decided that I need to make more of an effort to post more often. But I have been writing, I promise. In fact, I decided that I needed to give my novel another chance, after leaving it on the back-burner for the last three years while I got distracted by various projects and courses. I did the Certificate in Disability Studies in 2019 with the view of trying to get another job in the disability sector, and all I have got from that so far is further confirmation that I want to be a full-time writer. Lucrative? Not in the slightest, but I love it. I’ve been doing it for seven years now, with no-one prodding me to write. I’ve gone out of my way to prove that the statement “working on my own initiative” on my CV is true, that’s for sure. And when I look back on my writing career as a whole, I’m proud of what I’ve achieved, how many people I’ve reached and how many opportunities I’ve been given, from Independent Living Movement Ireland (ILMI) in particular (a big thank you once again).

Yet, when the opportunity came to push myself a bit further, I was reluctant. In June, ILMI joined forces with Skein Press and The Stinging Fly, offering a bursary to an emerging disabled writer. I eyed the advertisement with relish, but dismissed it initially. It wasn’t a good time: our house was being renovated and we were living twenty minutes away in Mountmellick, and we were coordinating the renovation as well as trying to keep Alison’s routine normal. The whole ordeal was so overwhelming that I had to step back from activism before I burned out. Suffice to say, it was a busy time, and when I threw the first ten pages of what I would usually term “my excuse for a novel” into the ring, the last thing I expected was to get an email two weeks later to say I’d won.

Reader, I felt euphoric. It was the middle of the July heatwave, and I brought Alison for an ice-cream so chocolatey and stodgy that we needed full showers afterwards; the pack of baby wipes didn’t cut it. I was so proud of myself. I had done it: everything I’d written since 2015 had been leading up to that moment.

But the next morning, after I had sent my “yes please and thank you for this opportunity” email to Nidhi Eipe from the Play It Forward Programme, I felt a sickness in the pit of my stomach. Why did I do that? I won’t be able for it. I’m not a real writer. No way am I good enough for something like this. Nidhi sent me a list of potential mentors from which I had to pick someone to work with. A list of established authors, with their work published, who knew what they were doing. I panicked, and drafted two emails. One was to Nidhi to say thank you but clearly there had been a mistake and I wasn’t the woman for the job. The other was to the two facilitators of a group that I’m part of called Writers Ink, and I wrote that even though I had been awarded this bursary, I wasn’t sure how I was going to maintain a pretence of being a half-decent writer and that I was terrified of making myself look like an idiot.

Thankfully, I didn’t send either email, as I would have succeeded in looking like an idiot. Instead, I stepped away from my laptop and took a breather for a few days. How was I going to shake this feeling of being a complete imposter? How was I going to overcome this feeling of sheer terror?

And then it came to me: I would have to fake it. I would have to pretend that I was a competent writer, capable of writing a novel. You see, the trouble is that I have never really taken this writing thing seriously. I’ve been told by people that there are some hidden gems in these pages, and yet I treat it like a diary, something I think no-one will read (perhaps taking the adage “write as if no-one will ever read it” a bit too far). In reality, despite how far I’ve come, I don’t feel like a “real” writer, deserving of any attention, positive or otherwise. The only thing keeping me going is coming to my laptop every day, telling myself “I can do this,” then typing as fast as I can before I change my mind, or overanalyse what my character is doing.

I’ve been allocated a terrific mentor, author and poet David Butler, who makes me smile: he loves Rachel, my character. Better still, he gets her, which I wasn’t expecting this early in our mentoring journey. He has been so encouraging on this novel-writing journey which can often feel so lonely, and now that I have more (though not full) control over my imposter syndrome, I can take his compliments as well as his suggestions for improvements and feel a sense of pride in my work.

I would like to thank ILMI, the Stinging Fly, the Play It Forward team, Skein Press and David Butler for this incredible opportunity. I won’t let you down! 

…Hopefully, if I keep telling myself that, it might turn out to be true.